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H Hope yr all well & had a good weekend There said it funny how my family & friends never say that to me anymore, diagnosed with mouth cancer 8 weeks ago had surgery to remove it along with half my cheek 19th march but am already feeling ivisible around them (its like HELLO i have cancer i'm not invisible ) i still have a life to live they cant offer enough help but they foget im still me :( having learnt friday that cancer was also in my lymph nodes (thankfully removed but 1 broke off) i am waiting for radio & chemo therapy to start having mask fitted tuesday so should be next week im told , i just want to feel normal is this strange !!!!! Being asked if i had a good weekend isnt that strange is it ????? P x
Anonymous
  • FormerMember
    FormerMember

    Hi Paula - hope things are going okay - you will be well into treatment now but just thought I would say that I found the use of tranqulisers an essential as I am very claustrophobic and would not have been able to have the mask on at all without - but then after a while I just got used to it.  Funny how strange things become he norm!!  Mind you - I will not forget the pleasure of having my feeding tube removed!!!  I had a lot of trouble with mine and a great deal of pain/discomfoRt but, in spite of my determination not to ever have to use it, it was an absolute godsend - so I am eternally grateful that they insisted I have one!

    Anyway - hope things are going okay

    JOJO

    XX