Things are moving at last.

1 minute read time.

Background

My husband Pat is 66 and has Parkinson's Disease, Type 11 Diabetes, Congestive Cardiac  failure and has had one heart attack and also has benign Asbestosis in his lungs and a large Hiatus Hernia. 

For the past year he has had regular vomiting and other odd symptoms. It was difficult to know the cause as symptoms overlapped due to his complex situation. This culminated in several hospital admissions and many different clinic appointments with a variety of specialists. It  finally ended on October 17 this year when a contrast CAT scan of his abdomen showed mass in his abdomen and a small area of concern in his liver. A biopsy diagnosed a low grade Carcinoid tumour in the messentry ( connecting tissue) near his bowel. The liver mass was too small to do a Biopsy. This is a rare tumour and often only found by accident during surgery for something else. 

Start of the journey

Tomorrow we start two days of Octreotide scans and then next week at last we meet with the Oncologist to get results and treatment plan. We have been told it will probably be surgery and chemotherapy. I have not found much about this in the groups so thought it might be of interest to others. Macmillan gave me a great link with lots of info about it from their site.

I will continue to post as we go along.

Panda692.


Anonymous
  • FormerMember
    FormerMember

    Hi Panda,

    My thoughts are with you and your Husband Pat tonight. Hope all goes well with the scans tomorrow. Keep in touch, and Look after each other.

    Take care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember

    Hi Panda,

    I'm glad things are finally on the move for you and Pat and it will be good to have that treatment plan in place.  Hope the scans go well and take care both of you.

    Nic x

  • FormerMember
    FormerMember

    Hi Panda

    Hope everything goes well for both Pat and yourself.

    Stay strong.

    Much love,

    Nin xxxx

  • FormerMember
    FormerMember

    Hi Panda,

    At last things are moving, and hopefully, once treatment starts you and Pat will feel some relief (I won't say better, but you know what I mean).

    Good luck on the journey and don't forget that the carer is as important as the patient.

    Look after yourself and keep in touch,

    Colin xxxx

  • FormerMember
    FormerMember

    Thank you all so much for your kind words of support.

    The scans went well although the first day was a long one and Pat got very tired. We are both feeling apprehensive about Monday but will be glad to know what comes next. At least we know part of the diagnosis, so whatever the outcome we already know that it is cancer.

    We had such an unfortunate experience 7 weeks ago when we called in for the biopsy result. Family travelled up and were waiting at home here and when we got to the hospital the consultant had not received the results from the other hospital as the consultant pathologist doing Pat's lab work had been taken ill. Thanks to our chest consultant ringing round madly all afternoon, he finally got a partial result for us before we went home at nearly 6 pm. A dreadful day I never want to repeat.

    At least we know that this weeks scan results were sent through to the Oncologist yesterday afternoon, so that will not happen again.

    I will report back after Monday's appointment and once again thanks for the support. 

    Panda.