Our journey from the start

  • The interminable wait goes on

    FormerMember
    FormerMember

    5 weeks after finding the lump, John had his appointment with the consultant for results yesterday. Except there were no results. The biopsy results were not back. And apparently they sometimes ask for a bigger sample anyway so they have now decided he will go in and have a big chunk taken out under ga tomorrow.

    That's the frustrating news.

    The worrying news is that the CT scan results are in and he has lymph node…

  • Waiting, wondering, worrying...

    FormerMember
    FormerMember

    Tomorrow's the big day. Last week I wanted to run away rather than find out what's going on with John. Now I just want to get on with it. Need to get on with it, as I feel that he is worse. He seems so exhausted and looks so peaky. On Friday night he found another lump on his neck. This time just the size of a pea and it felt to me like it was moving, and he can't actually find it now so we are hoping it was a bonafide…

  • The week of tests...

    FormerMember
    FormerMember

    John had his CT scan this morning. Tomorrow he has his biopsy. We've had some frustrations with arranging the appointments which has added stress to an already difficult time. The hospital haven't been as efficient as we were hoping they would be which is worrying. It has a bad reputation and friends are already telling us to go to Newcastle and maybe along the line that will happen.

    John has been prescribed…

  • A bit of background...

    FormerMember
    FormerMember

    I should just point out that this lump has not come completely out of the blue. My darling John, who is 3 years younger than me at 37, has had a bad 6 months. He has been fit and strong all his life. He moved in with me 12 years ago and never even registered at the local doctors until this year.

    It all started to go wrong in October 2013 when his dad died. His lovely dad was diagnosed with Motor Neurone Disease earlier…

  • From the beginning....

    FormerMember
    FormerMember

    I'm sitting here in a very normal family living room. My dog would quite like me to wash up, my two boys are in the garden playing football, and my husband, John (let's call him John) is making his traditional start of the world cup visit to the pub with his friends. It's strange how everything is still normal or teetering on the edge of normality. We are still going to work, we are still laughing with our friends, we…