Not because there's bad news. Quite the opposite. I've been superstitiously, irrationally terrified of jinxing it. Because as of today, the 20th of August, I have been out of hospital for three weeks. Three whole weeks without being admitted, without a dramatic blood result, without a midnight drip or an isolation sign or a junior doctor telling me results that belong to someone else.
I'm not going to make a big deal of it. I'm just going to quietly note it and move on before the universe notices.
Potters
The holiday was lovely. Not action-packed — we were all too tired for that, and anyone who's spent twenty-nine days in hospital followed by a calcium crisis and two days of emergency drips will understand why a gentle sit-down sort of weekend was exactly right. Albert managed to get an eye infection for the first day and a half of a three-day trip, which was peak Albert timing. The traffic in and out of Norfolk was, as it always is, an absolute nightmare — six hours each way, which is a special kind of suffering — but the time in between was exactly what we needed.
The numbers
Since coming home, things have been slowly and steadily improving.
The liver — which peaked at 2,500, which caused emergency biopsies and scary conversations and twenty-nine days on a ward — is now at 70. Normal is around 34-50. Seventy. I keep saying the number because I still find it slightly hard to believe.
Blood sugar is being monitored — four readings a day, a new home monitor, an app tracking the pattern. Everyone thinks it's steroid induced rather than true diabetes, and the data seems to support that — fasting readings are essentially normal, spikes correlate precisely with when the steroids are most active. Being referred to my GP for ongoing monitoring. Extra medication to manage it in the meantime.
The main focus now is the steroid wean. Down to 64mg from a peak of 200mg — more than two thirds of the way there. The liver medication will hopefully follow once the steroids are gone. Then, probably September or October, a proper conversation about what comes next for treatment.
What's coming
I'm starting to do more. Slowly, carefully, but more. Getting back toward a normal way of life in small steps. Albert and I are off to watch West Ham at the weekend, all being well. I'm starting to think about getting back to work.
The treatment conversation — what happens next with the cancer — is still ahead. That's a September or October discussion. For now the focus is getting off the drugs, getting stronger, and letting the body find its feet again.
The blog is likely to go quiet for a while. That's a good thing. Quiet means nothing dramatic is happening. Quiet means the bear isn't being poked.
Don't poke the bear.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007