Neuroendocrine Cancer Awareness

  • Did you hear the one about the constipated NET Patient?

    It’s a joke right?  Not really and it’s not very funny either!

    NET Cancer is very heavily associated with diarrhea, either as a symptom of one of the NET Syndromes (yes there is more than one …..) or as a result of surgery or certain other treatments.  Occasionally, these symptoms and side effects can all combine to make it quite a nasty side effect; and for some a debilitating condition.

    In my blog on…

  • “You must be doing OK, you’ve not had chemotherapy”

    chemotherapy-hand-and-arm

    If there’s a word which is synonymous with cancer, it’s chemotherapy.  It’s what most people have in their mind when they are talking to a cancer patient…… ‘have you had chemotherapy’ or ‘will you be getting chemotherapy’.  I was nonchalantly asked by a friend some time ago ‘how did you get on with chemotherapy’ – he was surprised to hear I hadn’t had it despite my widespread disease.  Cue – lengthy explanation…

  • I CAN!

    Most people with an incurable Cancer will go through both good and bad periods.  I quite liked a quote by fellow patient Karen who described that as the 'ebb and flow' of living with cancer and said the flow would always return at some point.  When I wrote my blog "Living with Neuroendocrine Cancer - it takes guts", that wasn't me being one of those trendy bloggers saying the sort of things people want…

  • My fight with Cancer

    In the past 12 months, I've read about 6 similarly slanted blogs on the subject of cancer metaphors and in particular their use in describing cancer experiences with the words 'fight', 'battle' and other 'military' sounding terms.  The authors say that perhaps this is not the best language to use.  I just read another yesterday where the author used the term 'violence' to describe these type of metaphors…

  • 5 years of Lanreotide

    When I was discharged from hospital following major surgery in Nov 2010, I knew I would shortly be commencing long-term monthly 'somatostatin analogue' treatment and had assumed Octreotide (Sandostatin LAR) would be the drug of choice. However, my Oncologist prescribed Lanreotide (known in the UK as Somatuline Autogel).

    Somatostatin Analogues (Octreotide/Lanreotide) are mainstay treatments for many Neuroendocrine…