Scanxiety – I just don’t get it!

2 minute read time.

The internet is full of blogs and articles about a subject which is described as 'scanxiety' - the joining of the words 'scan' and 'anxiety'. I also noted some authors using the words 'scanxiety' and 'anxiety' interchangeably which in my opinion is clearly wrong.

‘Scanxiety’  - I just don't get it  ......or more accurately I just don't get overly anxious about scans. Why? Because testing (scans in particular) is the one thing that’s going to keep me alive for as long as possible.  I was diagnosed 5 years ago thanks to the trigger of precautionary tests including a scan. I now live with the knowledge (and I accept this fact) that there are still bits of cancer inside me.  If I am not regularly tested, there is a chance I will eventually succumb to a serious or irreversible problem which should have been spotted earlier. Even in the event of ‘not so good news’ following a routine surveillance scan, I still see that as a positive because it means the testing has worked and an investigation can be commenced to more accurately localise and treat the problem. Even if you are in the diagnostic phase and a scan is ordered, you need to get right inside that machine and get it over and done with.  It just might save your life.

Users of the phrase also extend its meaning to waiting on the results of the scan.  I also find this odd as scanning is just one test and just one test result. Thinking back to my own countless appointments either for testing, treatment or for receiving results, I appear to be consistently pragmatic in my approach - the test results will be what the test results will be and I will save any worry until I know if I have anything to worry about.

Many cancer patients are under surveillance for a long time and are tested regularly. As an incurable cancer patient myself, I sometimes feel like I'm in a perpetual state of testing. I suspect if I was to let anxiety get the better of me, that would simply lead to other complications I just don't need.  I'm not that insensitive to forget that some people do probably get anxious about actually climbing into a scanner, particularly if they are claustrophobic but that is already a recognised anxiety issue rather than so-called scanxiety.  I also suspect people will be anxious about their relatives having scans, particularly the first diagnostic one, worse when young ones are involved and I totally get that. Anxiety (as opposed to so called scanxiety) is a pretty natural reaction.  However, to control your fears, you need to face them and then try not to let your anxiety filter down to others.

Scanxiety - I just don't get it.  As for the 20,300 search results on the internet, I just don't get that either!

Thanks for listening

Ronny

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Anonymous
  • FormerMember
    FormerMember

    I get it. I'm not in a perpetual state of anxiety and am not anxious about having the scans themselves, but I am due to get my results of my first post-treatment scans this week, and let me tell you I am very anxious!

    I logically know that being anxious doesn't affect the outcome one iota, but it's the waiting and not knowing that preys on my mind. I had done a fairly good job of not thinking/stressing about the whole cancer thing but now I am feeling pretty worried. I suppose it's like waiting for your academic exam results ....

  • Agree with Horsygal. It is perfectly understandable to be anxious before getting post-treatment scan results. Very hard not to let the mind think those "what if it's bad" thoughts.  Patients are left very much alone with this under NHS.  

  • Thanks both, I did regognise the post treatment results in the blog (so called scanxiety encompasses this aspect).   I'm on scan 20 something now as many Neuroendocrine Cancer patients are and this is one of my key points about the perpetual thing being counter productI've.    I also don't think we need the word, surely anxiety suffices.  Good luck both with your results.

  • FormerMember
    FormerMember

    Thanks. I had good scan results and am feeling mightily relieved ... but I guess I'll get all worked up again when I'm due my next ones!

    The mashed-up word I particularly hate is 'hangry' - angry because you're hungry. You what?

  • FormerMember
    FormerMember

    I like your take on this- your blog made me chuckle. Is your admirable sang froid a learned response though? I was on scan ten before I managed to approach the process with any sort of equanimity. When I first came across the term scanxiety it felt very accurate. Acceptance is not a state that comes naturally to many of us, I suspect. Xxx