Hello my name is Natasha i am 15. It was about 3 weeks ago when i was dignosed with Langerhans' Cell Histiocytosis (LCH. All i know is that it is on my brain in my piturity gland. This gland controls 5 different hormones and this type of cancer has kiled 2 of them theses are: growth hormone and drinking and weeing hormone. if there is anone on this site who has this type of cancer can they give me some tips about it because i am still learning about it.
FormerMember
well i think you have come to the right place, you'll get plenty of support here. if you get really stuck ring the helpline, they have very experienced people who will be able to help you on the bits you don't understand, i don't know about your sort of cancer, maybe you could tell us a little about it, its always good to learn off others
Hello there and welcome. I'm a new member to this site too - all I can say is there are many other people who'll understand what you're going through. I hope it is of comfort.
I am sorry I do not know about your cancer either. One bit of advice - I searched the internet about my cancer - hairy cell leukemia - and you must not take everything you read as gospel. I needed info too and this can be a good thing - to feel knowledgeable and in control. However I have learnt through my father's experience and my own that it's very personal. You are not a statistic. Take each day as it comes and keep your loved ones close.
The hospital/your consultant should help you with the information you need. use your time with them wisely - ask what you want. There are no silly questions.
Alsion i do know a bit about my cancer but not alot but the things know is that it is on my brain on my prudurity gland. This gland sends out 5 different hormones. 2 of my hormones have been kiled which is my growth hormone and my drinking and weeing hormone. If my cancer spreads then i will have to have chemo and maybe a operation. Thankyou for the support you have given me. lots of love from Natasha xxx
Thank you for letting us have more information, ie everything you know about your condition, Natasha. It sounds very rare, and very complicated - our brains are such complex things, and to have a problem there can make strange things happen all over our bodies. You are being very brave, and sound as though you are coping with amazing strength. Let us know what they are going to do for you now to make sure that this thing does not grow any more. We will try to give you some advice if we can find anything out, but it is important that you and your family get the right support in the hospital. Have you got a special Cancer MacMillasn nurse for you yet? What sort of things do you like to do Natasha? What do you enjoy? Do you listen to music? I want to wish you and your family all the best, xxxx Penny
thankyou so much penny. The things i ike to is i like to work with animals as i like to do sports. Penny there is one question i wouldlike t ask you how do u cope with having cancer? because i dont know whether to laugh or crying or what to do when i is all geting to much can u help me please! lots of love Natasha xxxxx
