Natasha's story

Less than one minute read time.
Hello my name is Natasha i am 15. It was about 3 weeks ago when i was dignosed with Langerhans' Cell Histiocytosis (LCH. All i know is that it is on my brain in my piturity gland. This gland controls 5 different hormones and this type of cancer has kiled 2 of them theses are: growth hormone and drinking and weeing hormone. if there is anone on this site who has this type of cancer can they give me some tips about it because i am still learning about it.
Anonymous
  • FormerMember
    FormerMember

    hi natasha, you have to do what your body tells you to do when you want to cry then cry, when you want to shout then shout. As i said in the chatroom we will all be sending you lots of hugs and kisses. My cousin had brain, lung and womb cancer 3years ago, she had chemo and radio and was given the all clear,she is now healthy and enjoying her life, you will get through this aswell. Things do get hard at times but there is plenty of us here to listen and talk. Make sure you have plenty of the chocolate you like, take care and am sending lots of love and hugs.xxxxxxxxxx

  • FormerMember
    FormerMember

    this might help us all to understand Natasha's condition better

    www.cancerbackup.org.uk/.../Langerhanscellhistiocytocis

    if we know a little bit more then hopefully we can help a little better

    lots of love

    Alisonxxxxxx

  • FormerMember
    FormerMember

    and as you love animals i will tell you about the antics of my pair of cockiteils, they are called Macey and Maddie, Macey is the male, though we only found that out 6 weeks ago when we decided to get him a mate (he was a rescue bird) they had four eggs, all barren as can often happen with the first clutch, you have to float them in tepid water and if they don't float they are ok, but if they do float like these four did then they are no good. anyway, Macey is like a mad man, Maddie has so far laid another 2 eggs so hoping this next clutch is going to be fertilized!  he has started landing on our heads when we walk into the conservatory  and we have nicknamed him Sid Vicous! Maddie is lovely, so meek and mild. anyway, when they finally have these chicks which should be in about 35 days time i shall get some pics and put them on my profile.

    lots of love

    Alisonxxxx

  • FormerMember
    FormerMember

    hi natasha, i hope you are feeling abit happier now, i hope you dont mind but i spoke to my cousins daughter today,(the one who had brain, lung and womb cancer all at thesame time) she was 23yrs and had just had her 3rd baby,she has asked me to tell you that she is thinking about you and sends her love. She says she had chemo and radio and that you will get through this, she said it was hard at times but you must look to the future all the things you have planned for yourself because they will happen, whenever you feel sad think of good times,talk, shout scream whatever you feel like doing when you feel not so good rest when you need to and go out a enjoy yourself when you feel ok, she was given the allclear nearly 3yrs ago and is keeping really well and doing everything as normal. So you see you will get through this and remember you have alot of people in the forum that will be here whenever you need to talk.Thinking of you and your family and hope this has helped abit.Ialso have cancer (breast) and having chemo but i promice you its not that bad.Sending lots of good wishes and hugs, lots of love carol2xxxxxxxxxxxxxxxxx

  • FormerMember
    FormerMember

    How are you today?  I keep thinking about you, and I am very glad that you were in the Chat Room with lovely people like Alison and Carol and everyone.  I love animals too.  We used to have budgies.  They ate the wallpaper.  They ate the covers of our books.  They chewed the wood around my dressingtable mirror.  They bit holes in  the curtains, and they also learned that, if they sunk their beaks into the curtains and flew backwards, they could close the curtains.  They normally flew round the house free during the day, and went into their cage at night (except sometimes they decided they weren't going in, and slept on the curtain pole).  If it was a nice day, I used to take them in their cage outside into the garden.  They called loudly to the wild birds - who only looked down their beaks at these brightly coloured foreigners!  What animals do you like best, Natasha?

    What sort of chocolate do you like best?  I cannot eat much chocolate now, but I do love Easter Egg chocolate.  I hope you are getting plenty of treats. xxxx Penny