this difficult journey

Less than one minute read time.

Mum has been admitted to hospital tonight, she is severely dehydrated as she isnt even able to keep water down now. Morphine syringe driver seesm to be helping control pain a bit better.  I feel really annoyed that doc did not just keep her in yesterday after her struggling to the appointment. Still talking about a stent to enable her to swallow fluids but apparently they can only carry that procedure out on wednesdays and she was too late for today!!!!!! if my stepdad hadnt phoned to get her admitted, she prob wouldnt be here next wednesday to get it done!!

Mum wants to be in a hopice not hospital, my fear is that she wont get her wish if sshe becomes too ill/weak. anyone know what the procedures are for transfer between hospial and hospice? These last 7 weeks have been like asteamroller, how are we at the stage already? Cant get my head round it at all, but just hoping mum gets the care she needs now!!

Sharon

Anonymous
  • FormerMember
    FormerMember

    I'm so sorry to hear about your mum Sharon.  I can't answer your question about transfer from hospital to hospice but, hopefully, someone will come along who knows.  I do know that people say the hospice is a much better alternative to a hospital and much more caring and peaceful so I hope, if that's what your mum wants, it can be sorted out.  Take care of yourself.  Love to you all.  Caroline XX

  • FormerMember
    FormerMember

    Dear Sharon, get in touch with your macmillan nurse now!  If your mum hasn't been appointed a named nurse speak direct to the oncologist/or his secretary and explain the situation.  No, her difficulties are no acceptable and something can be done, so you and step-dad take the reins, don't accept any feedback unless its from your mum's mac. nurse/oncologist.  They are the people who can make things comfortable for your mum.  It really is so sad that we, as human beings, allow our loved ones to be treated so badly - if she was a dog/cat or other, the vets would be 100% on the ball.  So, stand up, take a deep breath, take no crap.  Please god your mum will have been made comfortable and peaceful by the end of the day.  Thinking of you.  Ann

  • FormerMember
    FormerMember

    hi sharon

    sorry to hear about your mum.

    my dad was transferred from hospital to a hospice - the hospital sorted it out for us. ask, ask, and ask again, til someone arranges it - and as Ann says, dont be fobbed off.

    i can say that the hospice was a very peaceful, calm, and caring place, where nothing was too much trouble, and they are not set by the same rules and regulations as a hospital, so i sincerely hope your dear mum is transferred to one.

    my thoughts are with you at this difficult time.

    love, Claire x

  • FormerMember
    FormerMember

    Try and ask the hospital about a hospice they might have more information then you realise. Deffinately get in touch with a macmillan they can help beyond words.

    Thinking of you and you family

    Tiggs x

  • FormerMember
    FormerMember

    Thanks everyone for kind words and advice, just wrote new entry updating todays lack of progress.

    thanks again

    Sharonxx