Getting it off my chest

2 minute read time.
I am possible awaiting a hysterectomy, my specilist is taking advice and its driving me mad.

I was diagionsed with cervix cancer Stage 1b on 12th July, I had my MRI on 16th July.

At my appointment on 12th July it was explained that govement guidlines have to be followed, well I personal feel that is crap!
 I have deceided that I want a hysterectomy, after much thought, I have completed my family. I have got a good care package set up to assist with looking after my children, 4, 15, 16 year old. My 4 year does not not start main school till late September due to fact he just scrapes into this years intake, exams permitting 16 year old starts colledge, and 15 year old is so laid back I sometimes have to poke her to make sure she awake

But hear we are now 2nd Aug, and I dont know what happening, I have now cancelled my family holiday which booked 20th August for 2 weeks just in case, before you say 'ask the specilist team' I have and they cant advise me.

I also work which means I do shift work, some weeks I start at 0600 others start at 1400 and next week start at 2200 , and must admit that they have been good, even sent my to company dr, to much sure I am fit to work, before any treatment starts, but I am really sruggling on a personal note, I feel so tied, not eating / sleeping, and got told today by my local GP I need to lose weight, I am somewhere between 20-21st as it not doing my knees any good. Believe me I KNOW I need to but I am still having a discharge after my LLETZ, so I cant go swimming, so I have been doing a lot of walking, but when I go down slopes or stairs my right knee gives way.
I have read so my things about cervix cancer / hysterectomy through other web sites, but for some unknow reason both Jo's Cervical Canver Trust & Macmillan dont seem to have many people out there that are being treated or had this surgery, so please anybody out there please either comment or become my friend, because at the moment I feel so alone.

Also I want to raise awarness of Cervix Cancer is there any uk based charity, that selling awarness pins? Again I have found some but they are either based in uk or on ebay, I sorry unless I know is going back into research I not buying them, but it seams the colour to support is teal / white

Sorry this has turned it a sought of rant, but once I got writting I could not stop, I will be copying this and putting it on my blog on Macmillian site.

Love to everybody
Karen x

Smear - 25th Feb 2011
Colposcopy - CIN 3 - 21st March 2011
LLETZ - 13th June 2011
Diagnosed -12th July 2011 Cervix Cancer Stage 1b
Awaiting treatment
Anonymous
  • FormerMember
    FormerMember

    Hi Kaz,

    You are never alone on this site. Once people read your blog Im sure you will get plenty of replys. In the meantime

    keep your Chin up.  Look after yourself

    Take care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember

    Hi,

    Same as Sarsfield.. you are not alone here.... Can't help you with the practicalities but sending you a hug

    Little My x

  • I can imagine you must be in 'bits'. There is so much happening to you right now that you must feel overwhelmed. All I can say is (and its rather lame) is you can only take one day at a time. I do hope you have family support available to help take care of your brood.

    Cyber hugs,

    KateG

  • FormerMember
    FormerMember

    Hi Kaz,I had a radical hysterectomy in 2009,I would be more than happy to offer you any advice and support that I can....

    nikki x x x

  • FormerMember
    FormerMember

    Hi Karen

    My story is similar to yours smear Feb colposcopy 30 march,cone biopsy 30 June, MRI July 31 Following this I have been on holiday for 2weeks just back today Whilst I was away I have got an appointment for hysterectomy on 17th pre op 11th of this month.

    I am not looking forward to it but you have to do what you have to do. We can continue our journeys together

    Love Dianne