First Blog

1 minute read time.

My life changed on 10th July after a few mamograms and biopsys to be diagnosed with Ductal Carcinoma in Situ (DCIS) and to be told the only way I could move on from this was to have a right breast mastectomy. I thought my world had ended, I know it could have been a lot worse, if I have a mastectomy I should not need any further treatment unless there is anything found during my operation that they are not expecting. Since then I have had an MRI, a CT, a Bone Scan and apart from further lumps in my already infected breast everything came back ok. My breast nurses and consultants could not be any nicer, making me feel that I can phone them anytime, which of course I dont as I dont want to bother them. My emotions are all over the place, I burst into tears at a drop of a hat, a song on the radio a tv programme. My poor family are so worried, my dad had a heart scare due to the stress of his wee girl going through this. I hate what it is doing to them all especially my husband and boys. I worry about them the most, I worry I am going to leave them without a wife and mum. I cant tell anyone how scared I am that I may not come through my operation, silly I know. I have written out funeral arrangements, hymns, instructions for paying bills, insurances etc for my hubby as I deal with it all. My Mastectomy and reconstruction are scheduled for 8th October, they are using my tummy tissue to do my reconstruction so I can be in theatre up to 8 hours, having never had an operation of any kind before I am scared stiff.

Anonymous
  • FormerMember
    FormerMember

    I HAD  diap recontruction for my mastectomy  but i had to wait   dont be scared   i was diagnosed  2009   had the full works mastectomy 7cm tumour  lymph glads effected   had chemo then radiation so the whole of 2009 was treatment  had recon 2011    ive got a lovely flat  belly now lol    good luck with op stay positive 

  • FormerMember
    FormerMember

    Thanks i am trying to be positive, its not everyone that gets a free tummy tuck on tge nhs I suppose I should be happy, its just the unknown. My family and friends keep telling me im a strong person and I will be fine, funny how I dont feel that strong.

  • FormerMember
    FormerMember

    Hi Jennie9869

    I was diagnosed with breast cancer in March following 18 biopsies. Since then I've had a biopsy which showed the lump was 4cm not the 1 they were expecting & it had a friend. I've just finished chemotherapy and am awaiting mastectomy & reconstruction.

    So like you it's been quite a journey.

    At the outset I found out that there were 3 things I could do to improve the outcome of my treatment.

    These were:

    1. Stay positive. There are lots of studies that prove that patients who keep a positive outlook during treatment do better than those who become "poor me's".

    Question is how do you stay positive when you're panicking about the worse case scenario?

    There are lots of ways.

    1. Take control of the things you can. Becoming a patient is scary because you lose control of much of your life. It's hard to plan things when you're on the hospital appointment conveyor belt or having to take sofa days. But it doesn't mean you have to give up on normal life entirely. Ive carried on planning my normal social life as much as I can telling friends to confirm dates on the day to check I'm ok and when possible having a back up plan if I'm not up to it.

    Having nice things to look forward to helped me focus on positive things & stopped me wallowing in self pity (most of the time!)

    This summer while I was having chemo I directed a play and only missed one rehearsal. Many times I dragged myself to rehearsal thinking I didn't need this but returned home with more energy & glad I'd gone.

    2.Research the facts about your cancer. There are lots of different types. Find out about yours from your medical support team (my breast nurses were fantastic) Ask them questions like "what are the benefits of this treatment". "What else could be done?" "What can I do to improve the prognosis?" Check out reputable websites like is one & Maggie's centres. My breast nurse gave me a list of good websites to look at.

    Breast cancer is one of the most treatable cancers you can have. There are thousands of people who've had it and are alive & well years later.

    3. Surround yourself with people who make you feel better and avoid the negative ones. In my case the negative ones included my mum who turned the situation into an excuse for weeping & wailing at her situation. I ended up trying to counsel her! In the end I remembered what a colleague who'd had breast cancer 20years ago said to some of her friends who fell apart when she told them "I've got cancer - It hasn't got me!"

    The other thing you can do to help improve your prognosis is exercise. It improves your physical and mental health & can reduce the likelihood of your cancer returning by up to 60% which is better than any single drug. It doesn't have to be muscle bound gym type exercise. A good 1/2 a 1 hour walk that gets you warm and a little out of breath 2-3 times a week is perfect. I do yoga 2x a week and play a gentle game of (geriatric) tennis once a week.

    My local council is running a scheme to encourage people with cancer to take exercise details here. www.southportmacmillancentre.org.uk/move-more-programme

    Don't give up on yourself - you've got lots to live for, your wonderful family & friends for a start.

    Look for help & support - there's loads there if you need it. I've discovered a whole new world of kindness & positivity. I've decided my part in this treatment is twofold - 1 to check medical decisions & 2 to back up my medics work on my body by looking after my mental outlook.

    Above all be kind to yourself. There will be drippy days so on those go with the flow, put on a weepy film & wallow. As a friend told me, tears are healing too. Then when you're cried out you can return to a more positive frame of mind & get on with enjoying life. 

    After all none of us know how long we've got here but those of us with cancer have been given a chance to understand this and make every minute count.

    Good luck!

    PictureMish