So, here I am, 2 months after diagnosis

3 minute read time.

I've been meaning to write a blog ever since my father was diagnosed, but as often happens, things get in the way. Firstly, heres a brief introduction to whats happened so far.

My father was a fit, (fairly) heathly 80 year old. He'd kept active and trim, he only vice being the occasional whisky and travel, mostly on cruises. After the freezing cold winter of 2010, he went, with my mother, on a last minute cheapy cruise around the Canary Islands. Whilst on the ship, he didnt feel too well and my mother ate on her own for a couple of nights.

On their return to the UK, I met them at the airport and realised that something was very wrong. My fathers speach was slurred and his words (usually eloquent) were random and nonsensical. As I tried to make sense of what he was saying, I got thinking about the causes and narrowed it down to a small stroke, which was confirmed by his GP and a hospital visit a few days later.

He was given a very strict diet to follow as there was some concerns about his chloesterol levels and I was pleased to see he stuck by it too. Fairly soon afterwards, however, the frustration with his poor speach, plus his rapidly failing eyesight, indicated that something far worse was going on. His GP, concerned about his deteriation, got him admitted to Luton and Dunstable Hospitals Stroke unit in early April. After tests, they confirmed that, alongside the stroke, they found a Brain tumour, which was inoperable.

The Hospital, together with the Royal Free in London, decided that the best course of action was to send him home. No survival time was given, just that being at home would be the best in the long run. In the first few weeks at home, despite the difficulty of poor sight and speach, my Father settled and seemed able to cope. His GP made arrangements for District Nurse and MacMillan visits My father did not appreciate the gravity of his condition despite family and Nursing staff telling him.

Then last week he took another turn for the worse. Ever independent, he could barely get to the toilet without getting very breathless. As he had a GP visit booked, my mother arranged for the GP to do a home visit. Immediately his GP phoned for the paramedics as he suspected heart failure. On arrival at A&E, his breathing was monitored and eventually he was moved to the ACU.

 A Consultant spoke to my mother and myself and explained that, following a CT scan they had found a number of clots on his lungs, which was partially the reason for his breathing condition, he also spoke to us about his long term prospects and discussed DNR, which we agreed was the option. Since then he has been moved to an elderly care ward and is on oxygen 24 hours a day.

The medical staff, from Consultants to Nurses, porters and support staff, have all been brilliant and have kept us, his family, up to date and informed. Although I am not a medical person, I can see him slowly slipping away and with every visit I can see a bit more deteriation. For the past two days he seems to have come to terms with his fate and has been calm and subordinate, instead of his usual combatitive self. Whether this is a sign I am not sure.

This has been my first brush with Cancer and this site has been a great information source and the Macmillan staff have offered fantastic support, I will add more updates to this blog and I hope anyone reading this can see that, despite by Fathers impending death, in writing this i want to say that death can be dignified.

Anonymous
  • FormerMember
    FormerMember

    Hi Roblegin,

    Yes this is a great site for Information, Friends, Help, and Understanding.

    My sympathy goes out to you and your Family. But

    if it is any consolation. Death will and can be most dignified,and coming to Terms with the acceptance  of Death is the answer that will help most people cope. Stay strong.

    Take care and be safe Sarsfield.xx

  • FormerMember
    FormerMember

    Hello Roblegin,

    I'm very sorry that your Father is so ill but it sounds as if he is recieving good care and that you are all aware of how things are going.

    I will be thinking of you.Take care.

    Vee.xx

  • FormerMember
    FormerMember

    Thank you for sharing your experience.  All best wishes Cathy X

  • FormerMember
    FormerMember

    Thank you all for your kind comments. Since I wrote my blog there has been a mix of good and bad news. Firstly, over the past 3 weeks the clots on my Fathers lungs have diminished, meaning he can now breathe much better. in the meantime, however, his cancer has spread, making verbal communication difficult and frustrating for all.

    My father has been allowed home after my Mother had consultations with Social Services and the hospital. This again was a mix of good and bad and didnt seem 'joined up', which caused my Mother concern. As his breathing improved, his old fight and combatitive nature has returned, so despite being told that he cannot go upstairs, he still tries, causing stress and anxiety.

    Sadly, because of the nature of his cancer, his memory is failing rapidly and simple details are proving difficult for him to grasp. The family are trying their absolute best to be helpful and understanding as are the social care team.

    I have teenage children and have told them to remember their Grandad as he was 4 months ago, not the person they see now. I really hope that he can finish his good, well meaning and dignified life in a dignified way.

    I would like again, through this site to thank everyone who has helped, commented and advised in this difficult time. Strength comes from within, thank you all.

  • FormerMember
    FormerMember

    Update... So here I am, a couple of months on and my father is slowly getting worse. His speech is almost completely gone now and alongside very swollen ankles, his balance is failing. My mother is becoming increasingly concerned. She has been very patient with him, despite his outbursts of anger. She has a carer in twice a day and a MacMillian Nurse who comes a couple of time a week for support.

    Lately though, my father has been doing things which cannot be explained. This affects my mother deeply. The other day he filled an electric kettle with water and then put the plug and cord into it! My mother was too scared to use the kettle again and bought a new one, in case the old one blew up. He has also started to move things around the house (those he can lift) despite being told not to.

    If he goes in the garden to enjoy the weather, he nearly always ends up trying to do jobs which he is no long capable of, such as trying to trim some ivy or water a plant. He is almost permanently cold, or so he thinks and sits with the fire on mostly. Of course recently it has been very warm so you can imagine how hot it is inside the house.

    My mother is now facing a dilemma. She feels that she cannot cope much longer and has been looking at putting him in a home. She worries that this is cruel and he wont be looked after, but on the other hand, deserves some peace herself.

    We have had a family meeting about this but we didnt reach a conclusion. it is sad that it has come to this and we all feel that his brain tumour has a bad effect on the family and on our memory of him. We keep saying 'its the tumour, not him' but that is difficult to believe sometimes.