what next

Less than one minute read time.

FormerMember

12 Jul 2011

After having her grade 3 Anaplastic Astrocytoma debulked again in January my beautiful daughter stevie had a stroke. After rehab she was able to walk and talk again, but unfortunately the poor wee soul caught pnuemonia and has spent the last 3 months in hospital. Before going into a rehabilitation unit we were told that she had swelling on her brain, that was 4 weeks ago and we are waiting for an appointment to start her Chemo. Stevie is coming home next weekend as they cant do anymore for her, she's very weak and cant walk, her speaking has been affected and she shakes all the time. I cant wait to get her home but im scared as no one has told me what to expect next, i know she's going to die but im not ready to loose her just yet. I dont know if palliative chemo will benefit her i dont know what to do..........

FormerMember over 13 years ago

Hi Karen maggie, I'm sorry to read your daughter's story. I cannot imagine what you must be going through.

I really hope you have loads of support from both the medical teams involved and also family and friends.

I will be thinking of you and would love to hear how you and your daughter are faring, so please continue to come on and post and get some much needed support.

Sending love and hugs, Christine xx
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FormerMember over 13 years ago

Dear Karen, just read about your daughter - my heart goes out to you. Get her home asap. Don't even mention chemo unless she does. She will need your love, care, food, any food she can tolerate, no matter what it is. If she is to regain her strength, the most important thing is to eat, drink and sleep. Ask her gp if she can have something to help her sleep at night so she can regain as much as poss. Apart from that, take each day at a time, don't expect too much and when she's tearful just cuddle her and make her feel secure in her mums arms. The chemo question will be discussed if and when your daughter has regained enough strength and it should be her decision. Love to you all as a family and strength for the mountain ahead. Ann x
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FormerMember over 13 years ago

Oh Karen, what a hard situation. Take her home and talk to her, find out what she wants, whether she wants chemo to try and prolong things or whether she just wants to let nature take its course. It sounds like she's put up an amazing fight to get this far but she might not have the heart for another battle. Take the time at home to build her up with her favourite foods and nutritional drinks and the issue of chemo can be tackled when she's strong enough to face it. The medical team will suggest it if they think it'll help her and in the meantime, you could discuss it with your Macmillan nurse, district nurse or nurse specialist if you have questions, hopefull they'll be able to give you some answers. Keep in touch and let us know how she's getting on, I hope she feels better once she's at home.

Thinking of you both, Vikki xxx
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FormerMember over 13 years ago

Thinking of you at this very sad time and sending you all my love and hugs, I do know what you are going through as i lost my beautiful son on 19th July , I am here if you need anything or just someone to talk to.

Lots of love

Irene
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