My daughters brain tumor

Less than one minute read time.

My daughter Stevie was having funny turns for a number years and the doctors were not very helpful. 2 weeks before her 25th birthday she was send for a scan. This showed that she had a brain tumor. She had an operation one week after her birthday to de-bulk the tumor. She came through the operation really well the only side efect was she had lost part of her sight in one eye. The following year the grade 4 tumor had grown and she was sent for a 7 weeks course of radiotherapy. The poor we soul lost all her hair and despite having beautiful wigs she lost a lot of her confidence. She has been doing really well until we had a routine scan this September her tumor has grown again. Because she is feeling ok and has not had any fits the surgeon doesnt want to see her till January 2011. I dont know what the future holds for her but for the next 3 months I will make sure that she has a brilliant time.

Anonymous
  • FormerMember
    FormerMember

    Hi Karen,

    I am a fellow brain tumour patient, although a lot older than Stevie (43).  I only lost the front half of my hair (from crown forwards) and although I bought a beautiful wig - better than my own hair - I understand how crushing it is.  I know others see it as a very small part of the big picture....but its been the worst part of my treatment so far.  I had RT in March 2009 and although most of the hair has regrown, the bit above my tumour location (right frontal lobe) is VERY sparse and it grows so bloomin slow.

    I no longer wear hats, but wide fabric headbands - I know look like an aging Bon Jovi fan!  I also suffer from very bad short term memory problems.

    I wish you all the luck in the world with Stevie's battle against this awful disease.

    Debs xx

  • FormerMember
    FormerMember

    Hi Karen,

    Im sorry to hear your young daughter has a Brain tumor. But I think the consultant not wanting to see her for 3 months is a good sign. Debs would be in a better position to answer that than me. She has been through hell and back to where she is today.

    My thoughts are with Stevie and yourself. All the Best and Good Luck.

    Take care and be safe Big Hugs Love Sarsfield.xxx

  • FormerMember
    FormerMember

    Thanks Debs hope your doing ok Stevie also has memory problems but we try to make a joke of it. She has just had her hair cut in to a very short bob and I think she looks gorgeous.

    I think you look better than any aging Bon Jovi fans that I have seen.

    Take care xx

  • FormerMember
    FormerMember

    Hi Sarsfield thanks for your lovely comments, as a mum I know what you must be going through, all we can do is be strong and be there for them every step of the way. I hope everything works out fine for you and Debs.

    Hugs and Kisses xx