Continuing on

1 minute read time.

Any way, after the diagnosis, we have a steady week or two, we know what we have to deal with, pain management is at last achieved, thanks to the Macmillan nurse, not the GP, we have the emotional stuff, I have to look him in the face, tears in both our eyes & tell him whatever happens I'll not see hime & mum split up. They celebrated their 60th wedding anniversary last year, not going to let them be seperated untill the end.

So then his GP "pops in" & bowls him off his feet discussing where he wants to die, the fact they will not resuscitate as CPR would not work, so for the next few weeks he's grumpy as hell & taking it out on us.

I wish we could get through to him, he just clams up whenevr we try & talk about things we need to discuss.

Then last weekend he keels over in the garden, GP confirms nothing broken thank god, just cuts n bruises, so lucky, but its down to "deterioration" rathe than a faint etc, so just like that the last sembelence of independence is fading away, finally manage to convince him to wear a emergency response pendant, so if it happens again he can call for help.

And we have another emotional week as we realises his existance hangs in the balance, that before very much longer he will have to accept full time care at home.

Anonymous
  • FormerMember
    FormerMember

    Hi Andrew,

    Sounds like you're having a stressful time and your poor dad is struggling a bit. Have you had the district palliative care team in to the house to assess it? When my dad was at home, towards the end the palliative team came in and assessed for equipment we needed. We ended up with special chairs, a wheelchair, toilet aids, rails, ramps, the works. It made things much easier and there might be stuff they can suggest for your dad that'd make independant living a bit more practical. At some point yes, he's probably going to need more care than your mum can provide and at that point you'll need to decide what to do for the best. It's a really hard and awful situation, to be honest we didn't have the same thing because my dad was only 58 when he died so when he went into hospital mum spent the nights there and I visited every day after work but I can see how yours is a more difficult one to work out. Best of luck with it and I hope your dad is feeling a bit better now xxx

  • FormerMember
    FormerMember

    Thanks, to be honest I've been bottling this lot up. Just writing it out on here has proved theraputic, you know it's not a man thing to talk about stuff!