Had oncologist today, she was 2 hours behind the other day and i just couldnt sit there, anyway had a go about her lack of info in English, instead of being in Jargon, which she had done, after 40 mins i think she got the point. I had a whinge about their beign no Macmillan publications anywhere about TNBC, she tried to convince me that TNBC was a jargon wording for it, but after i reeled off the research I had done she changed her mind.
SO i have TNBC, although it was small, its likely its genetic because although they know about BRAC1 aqnd BRAC2 its all early days, the genetisist said that there are probably other genes they are yet to find, she says because my sister had BC so early and that it kept coming back, also that my Aunt had ovarian cancer its likely to be a gene thing, she is going to recall their medical records so that she can explore this. The oncologist said that without chemo i have a 30% risk of it coming back, with it its a 20% and of course we dont knwo whether it has gone anywhere but worth it think.
they are looking into me having a double mastectomy, but this will be either before or instead of radiotherapy - and after chemo. its a bit scary because now its not an off chance its in my make up, i cant get my other sister to see this, she thinks its rubbish, Guys Hopsital have offered screenign for Jess my daughter, but the oncologist has said I only get screened once a year - i find that a bit scary.
have also had my head shaved because my hair was hurting - like i had had it in a pony tail for days on end! so now its a crew cut No.4 and i wear a bandana.
2nd chemo on Thursday, not looking forward it! - i feel i know more but i am not sure how to fight this, its like i have no control, i am going to research it all and hopefully go into a trial.
