I've not been around for a few days as we've had a house full of visitors at the weekend then Toni has been in a lot of pain which the Palliative care nurse has been sorting. Toni now has an increased dose of morphine 50mg twice a day, Buscopan 20mg 4 times a day, paracetamol 4 times a day and amiltryptiline once a day. He also has oramorph for breakthrough. This regime seems to have kicked in and he seems much brighter. Strangley he is not sleeping as much now. I guess because the pain is under control he feels much better and so is more alert.
On a down note though his feet are really swollen. The pc nurse thinks this may be lack of protein in his body. Yeterday his groin swelled too but this has gone down today.
On Tuesday he has an x-ray appointment. I don't know who arranged it but we think it is probably to check the stent is still in place.
We've had snow this week which is unusual for Blackpool. I managed to get out though and its lovely to be in the crisp cold air when you've been cooped up in the house. Even though I usually walk round the corner to the local shops it does give a lift to the day. I had a really severe headache most of the weekend - brought on by the stress of visitors - and going out seemed to help.
I won't drone on about the visitors. They brought problems. Toni's family have dealt with his diagnosis in quite a passive way, hardly ever visitng or phoning. His mother has problems accepting the diagnosis - she doesn't believe anything I say, although to my face she doesn't say a word. She panics if I don't answer the phone and rings the rest of the family and says he's dying. Its a lot to deal with and my best course of action is to let her get on with it. Coupled with the fact that Toni has a free floating DVT which could have killed him. His sister was visiting and saw his leg and never said anything. Sje is a nurse. Once it was diagnosed she said to me 'I thought it might be a DVT but I didn't like to say'. Never mind that it could have finished him off. All she had to do was tell me quielty and advise me to go to the hospital instead of sayiong nothing.
Anyway Toni is a lot more settled and although still spends all day in bed he does get out now and again for a look on e bay. Unfortunatley that also means he bids for things!!
