I've been through this long hard journey with my grandad which first started with investigations around 5 or 6 years ago. After lots of of appointments he was finally diagnosed with MDS (Myelodyplasia Syndrome) after having a bone marrow sample taken. The timespan between his regular blood transfussions became closer and closer until his was being transfused every week. His red cells were always very low. In July he had another bone marrow sample taken and it revealed that it had progressed with avengance to AML (Acute Myeloid Luekaemia). 3 weeks ago on thurs his blood result were red cell 8.7 wbc 128.3 and platlets 16. He had a blood tranfussion. The docs said we wouldn't make it to the next week. But evey week my grandad was still determined to get to the hospital and I made sure I got him there. He made it his weekly goal. Amazingly the next week his rbc were 10.1 wbc had dropped to 37.8 and platlets were 8. He had 2 bags of platelets and was determined to make it to the next thurday to see if the platelets had bought him any more time. God knows how but he defied all the odds and actually made it to the thursday 24th Sept. I don't know how me and my friend got him to hospital but we did. He came home from hospital on Friday at 3.30pm. The district nurses came and inserted the shringe driver at 9pm. My beautiful grandad passed away at 1.01am 26th Sept 09. He died peacefully in his sleep. I'm now left with a great hole full of extreme sadness. Life is never going to be the same again. I love him more than words can say already. I've spent so much time with my grandad, I've shared his pain and now he's gone. Luckily I got to have him in my life for 36 years and he has been my role model and my best friend. Where do i go from here?
