When i used to go to hospital appoinmaents with my grandad, I was the only member of family the Haematology and PIU unit staff saw. I built good relations with them and when i took my grandad for bt's, i would talk in private with the doc or staff nurses about any concerns. In July when i expressed my concerns about my thoughts of progression of my grandads condition (ie, he was more tired and sleepy, more unstable…
I've been through this long hard journey with my grandad which first started with investigations around 5 or 6 years ago. After lots of of appointments he was finally diagnosed with MDS (Myelodyplasia Syndrome) after having a bone marrow sample taken. The timespan between his regular blood transfussions became closer and closer until his was being transfused every week. His red cells were always very low. In July…
