Oesophageal cancer ECX then surgery

1 minute read time.

Husband is 75 and for a few months had suffered from excessive burping when eating/drinking. Went to GP after suddenly almost choking one day. GP (bless him) immediately arranged for camera-down-throat job at Southend hospital. We had thought they'd say hiatus hernia or similar......

However, they couldn't get the camera down all the way cos of a 'growth' blocking its passage and the operative told us, regretfully, it was almost definitely cancer. Biopsies were taken and a CT scan done. We went back a week later & told T3N1 oesophageal cancer. PET scan done and then seen by surgeon from London Hospital, Whitechapel (they don't do this surgery in Southend) who said that cancer was at junction to stomach, it is operable and the intention was to CURE. Arranged for 9 week's ECX chemo (3 sessions every 3 weeks plus daily chemo pills 1300mg twice a day). Plan is 9 week's chemo, then scan, then 4-6weeks for body to recover, then surgery, then repeat of 9 weeks chemo. 1st infusion done 2 week's ago. First 9 days poor hubby felt awful but got considerably better from then & his ability to eat has vastly improved tho sometimes he gets bad pain in front and in back.

Appt.with oncologist Monday 21st Sept,  He was encouraging saying that as hubby is having less problem getting food down over last week, more than likely chemo already shrinking The Beast.    2nd infusion Friday 25th. Having read other folks' problems after surgery, while trying to be optimistic we are dreading the surgery/recovery bit. Sounds horrendous.

If anyone has had surgery done at London Hospital, Whitechapel, would really appreciate hearing from them.

Just to add to the picture, I had breast cancer 6 years ago (surgery/chemo/radio) and poor hubby had major surgery for an aortic aneurysm 4 years ago.  We thought we'd had all the bad cards dealt..........

Can't believe our luck: Southern Oesophageal Support Group (afli. to Oesoph. Patiets' Ass) referred me to a guy who last year had same surgery as my husband hopefully will have after this chem AT SAME hospital BY SAME surgeon.  He was very helpful and encouraging.  He also mentioned that he got FULL travel insurance (including this cancer surgery etc) from Medici Travel (link below).

http://www.medicitravel.com/cancer-sufferers.cfm

 

Anonymous
  • FormerMember
    FormerMember

    Hi Mummy Carol,

    My heart goes out to you.   I understand completely what you are going through.  My dad, 76, has just had an 8 hour operation for the same type of cancer.   He had 3  sessions of chemo 24/7 for 5 days each time, and two weeks ago had the operation.   If it is any comfort the operation went very well.  He was in high dependancy for two days but then, unfortunately, developed pneumonia and a couple of blood clots, we are ASSURED this is normal!   He was taken into intensive care and is currently still there on a ventalator to help him breath.    They are treating the pnuemonia (chest infection?) with antibiotics and are happy.  They say he is 'critical but stable'....seems like a contradiction to me but hey ho.     One of our friends had same op 9 months ago and is recovering nicely, she is 58.     One of my friends brother inlaw DIDNT get op as his tumor was too big, he was given two weeks to live and given chemo and radio....TWO YEARS on he is in remission!      There are other people on this site, kitty little and lady long legs, who have both had the surgery and I am sure they would gladly fill you in on the details.   I havent seen them mind since the new 'upgrade' to the site!    I know it all sounds horrendous but you WILL get through it, its the same old scenario: one day at a time.  But it is true!   When I look back at all we have come through it is a blurr, you will get the strength from somewhere just to get on with it.   My dad has his surgery in the Royal in Glasgow.

    I really hope this helps and pray for you and your hubby to get through it.

    Take care

    Netty x

  • FormerMember
    FormerMember

    Hi Mummycarol, try and join the group Gullet (oesophageal cancer) - can't remember how you do it - but that is the part for questions/advice.  Hope your hubby is ok!  Take care of yourself too! Karen xxx

  • FormerMember
    FormerMember

    Thanks Netty and Karen.  Before the site got messed with, Gullet (oesophogeal cancer) was where I headed; I read and learned a lot there from some really nice people.   But now, if I try to get that page up all I get is a list of who's posted, not the actual message.  I'm really lost :(

  • FormerMember
    FormerMember

    try this link - no idea if it wil work! x

    community.macmillan.org.uk/.../256173.aspx

  • FormerMember
    FormerMember

    I've been encouraged by reading these blogs. My partner was diagnosed end of |August and after further investigations  had 3 cylcles of chemo (ECX) from October and surgery last Thursday. After 24 hrs in Critical Care has been transferred to the ward. I am awaiting Day 5 (Tuiesday) with some anxiety as that's when he will takeoral nutrition and we discover any leaks in the surgical join. GlenysP