Oesophageal cancer ECX then surgery

1 minute read time.

Husband is 75 and for a few months had suffered from excessive burping when eating/drinking. Went to GP after suddenly almost choking one day. GP (bless him) immediately arranged for camera-down-throat job at Southend hospital. We had thought they'd say hiatus hernia or similar......

However, they couldn't get the camera down all the way cos of a 'growth' blocking its passage and the operative told us, regretfully, it was almost definitely cancer. Biopsies were taken and a CT scan done. We went back a week later & told T3N1 oesophageal cancer. PET scan done and then seen by surgeon from London Hospital, Whitechapel (they don't do this surgery in Southend) who said that cancer was at junction to stomach, it is operable and the intention was to CURE. Arranged for 9 week's ECX chemo (3 sessions every 3 weeks plus daily chemo pills 1300mg twice a day). Plan is 9 week's chemo, then scan, then 4-6weeks for body to recover, then surgery, then repeat of 9 weeks chemo. 1st infusion done 2 week's ago. First 9 days poor hubby felt awful but got considerably better from then & his ability to eat has vastly improved tho sometimes he gets bad pain in front and in back.

Appt.with oncologist Monday 21st Sept,  He was encouraging saying that as hubby is having less problem getting food down over last week, more than likely chemo already shrinking The Beast.    2nd infusion Friday 25th. Having read other folks' problems after surgery, while trying to be optimistic we are dreading the surgery/recovery bit. Sounds horrendous.

If anyone has had surgery done at London Hospital, Whitechapel, would really appreciate hearing from them.

Just to add to the picture, I had breast cancer 6 years ago (surgery/chemo/radio) and poor hubby had major surgery for an aortic aneurysm 4 years ago.  We thought we'd had all the bad cards dealt..........

Can't believe our luck: Southern Oesophageal Support Group (afli. to Oesoph. Patiets' Ass) referred me to a guy who last year had same surgery as my husband hopefully will have after this chem AT SAME hospital BY SAME surgeon.  He was very helpful and encouraging.  He also mentioned that he got FULL travel insurance (including this cancer surgery etc) from Medici Travel (link below).

http://www.medicitravel.com/cancer-sufferers.cfm

 

Anonymous
  • FormerMember
    FormerMember

    Hi everyone, 

    my dad (73yrs)  has just been diagnosed with advanced oesophageal cancer - inoperable and pet scan showed a metastasis in the right pelvis.  They had built us up from his CT scan (that showed no spread) saying they would probably operate after chemo and radiotherapy!  SO...........shock after his PET scan results!

    It is day 3 after us hearing his results - he did have 2 stents fitted 2 weeks ago as he could not get anything down as the tumour is so large!

    We are due to go to see the oncologist tomorrow (friday) to assess if dad is fit enough for chemo! 

    I did ask the surgeon how long dad had - obviously he has to go on averages - 3 months without chemo, 9 months possible 1-2 yrs IF he can tolerate the chemo!  I have not told my father this - he has been in great pain since monday and i got the gp to give him stronger pain relief (Zoramorph) - which fingers crossed, yesterday he was more comfortable and pain free - still very weak and he is not eating much - BUT i think he is now worried that he only has days left. He keeps asking me how long he has got!  I think i am going to tell my dad the prognosis today, perhaps that will help him fight a little stronger ( I DONT know what to do for the best)  - we have to fight this as I feel like the surgeon has just wrote him off!

    It has been a very very distressing 3 days and very emotional - my mum is devastated and really really upset, of course!

    I really have to fight this with dad and get him focusing stronger - he is unbelievable and is not frightened of dying - he asked my husband to get all of his financial issues sorted whilst he is still here to help sort them!

    I think i am going to try and get an appointment with the surgeon to discuss things more complex as our meeting with him on Monday was so quick and so devastating we could not take it all in!  

    I think they have just written my dad off!!!!

  • FormerMember
    FormerMember

    Hi cutey1, Could you check your emails as we just sent you an info email about joining some groups to get you settled in here.

    Take care, George & Jackie (breast group)

    Sorry about using your blog as a stepping stone - Carol

  • FormerMember
    FormerMember

    <p>Just been diagnosed with oesophageal cancer at join of stomach. Waiting for pet scan in 2 days. In a state of fear, fluctuating between hopelessness and positivity. They said unlikely they would operate, chemical and radiotherapy.

    </p>

  • FormerMember
    FormerMember

    <p>Hi Katy-M,</p>

    <p>I&#39;ve written you an email with some pointers on how to use the community.</p>

    <p>Jess</p>