Excited for chemo, what have I become?

3 minute read time.

Logging on today I realise it’s been two weeks since I posted. Apologies all I guess the reason being there hasn’t really been much to update on until now.

First things first, the boys are back at school! Hurrah Smiley I love my boys dearly but there is no denying that Chemo, and work and home schooling was not full of fun everyday! Now they are back at school everyone is much happier! Boys are excited to see their friends, S and I are trying our best not to be jealous that they are now allowed to socialise, but also making the most of the 9-3 piece and quiet to actually get some thinking work done, without the juggling school google classroom calls, phonics videos and switching who’s in charge etc! 

I can also get back to resting properly during the day which has made a huge difference to my energy levels, so when the boys do come back from school I can engage with them so much better. 

I’ve been plodding on through my chemo sessions, same old friends of side effects which I’ve just gotten used to now. The energy of someone 3 times my age, Insomnia some nights (but not in a predictable pattern that would be too easy!), teenage acne, early menopause (and all its joys), fun tummies (and all the Britishness embarrassment Grimacing that comes with them) and then in the last week to add to this a lovely taxol skin rash! 

Ive had this on my hands now for several weeks, which is really common. But this last week my body obviously felt that with the boys back at school I needed a new challenge and so the rash developed quite quickly over the last week the result of which led to me left leg now looking like I’ve been for a night on the town and just fallen down and badly bruised my foot, ankle and leg. Or alternatively like I’ve swapped legs with Frankenstein’s monster!

This extent of the rash is apparently not as common (lucky me!), when I showed the cancer nurses on Tuesday as I had my blood and Covid tests they were really concerned. So much so they wanted my oncologist to see me first thing ahead of scheduled treatment today to decide whether I could go ahead this week or postpone my chemo. 

When I heard this I had a little cry when I got home. I then had only 3 of 18 sessions left and the thought of having to postpone when I’m so close felt like torture! I am done with chemo now I don’t want it prolonged I want to move on to recovery from this and then surgery! 

So I went into my meeting this morning reading for a fight! But thankfully it wasn’t needed. The oncologist agreed my leg is not pleasant and isn’t right, but I only have 3 weeks and sessions left. Whilst he could try and play with the drug levels etc now to appease it by the time we worked out the right doses I’d be done! So we’re cracking on as planned (albeit with strict instructions to contact the team if it gets worse)

The relief I felt was huge, the plan was not changed and now I only have 2 chemo sessions left, this stage is nearly over and I can start preparing myself for the next one and in the meantime learn to love my new Frankenstein leg. I only now have to question how have I turned into a person who was so overjoyed to be receiving chemotherapy today!?

As ever take care all x

Anonymous
  • Yay! Am so glad the chemo is still on track. Obviously don’t save your boobs at the expense of you leg, keep talking to the medical professionals especially if it worsens, but I’m so heartened that they’re not so shocked by it that they want a hard stop. You’ve pressed on through 4 months of this with wit and resolve, you don’t deserve that this chapter be prolonged! Keep on keeping on. This too shall pass (and hopefully this phase in a fortnight!)

  • FormerMember
    FormerMember

    Just saw Rod chatting to Steve this evening and realised I have been ignoring you - so sorry, but have just caught up with your blog on your latest news, and do hope the latest chemo has not left you feeling too awful. Just have to keep plodding on and yes, only 2 to go - the end in sight!! And then on to the next stage, Keep a smile on your face. And keep getting as much rest as you can. Loads of love