Feeling very low, never been so emotional.

Less than one minute read time.

Had my first fec chemo on wednesday. All quite scary as didn't know what to expect. Felt very sick since but am gratful hat I haven't been sick. Today my mouth feels tender. What has suprised me the most is how restless I am during the evening, I seem ok until about 5pm then I find I am getting grumpy and cannot get comfortable at all, no matter how I sit or lay. Outbursts of pure emotion hit me like a brick wall and I often sit crying quite uncontrollable, for how I feel now, why me thoughts, and the effects this must all be having on my family. Yes feeling quite sorry for myself at the mo, which is just not like me normally, but even the strong get emotional I guess.

Hope anyone reading this is bearing up, just as we have too, and my beast wishes go to all fighting this vile and heartless disease. 

Anonymous
  • FormerMember
    FormerMember

    Hi

    I read this and thought, who wouldn't be having emotional highs and lows during treatment? Who would be perfectly calm and strong and have no need to share how they feel? Well much as I tried... and I did... I couldn't think of anyone...

    So if you and I can agree it is ok to feel these things, what I want to ask you is - could you feel something else instead? The good thing is you are feeling... lots of people go numb....

    So if you could find a space in your day, a quiet place and allow yourself time to choose some new feelings maybe start simple with calm, peaceful, resilient, building up to the ones that need energy, determination and spirit...

    When you see how it is you that chooses your feelings, and it is you that can change them you will be making gains in your journey against your cancer...

    Try the be kind to yourself technique... look in a mirror and really look into your own eyes and say a few true and kind things about yourself... thank yourself for being strong, for taking on the cancer and for recognising how the journey will sometimes get diverted or delayed... the destination is the same... wellness and happiness with those you love

    Jules xx

  • FormerMember
    FormerMember

    Hi motherofone,

    I was also very scared of staring chemo... doesnt seem to matter how much you read up on it, it never truely prepares you for what your body is about to go through!!

    I struggled quite badley with round 1 and had a stay in hospital........ however, due to this i am now on all the right medication to try and prevent this from happening again. So if the sickness gets to much or your mouth becomes to sore then you must speak up, dont suffer in silence!!

    And as for the emotions, well where to begin lol i have flipped my pillow over so many time through crying into it, but it helps me so if thats what you need to do from time to time then do it!!!!

    One thing i always find that helps me is to always remember that this isnt forever and simply a blip in what will be a long and happy life!! :-)

    After a few days when the effects have worn off you will think to yourself what a small price this is to pay, a few days of feeling crappy for a lifetime of happiness with our loved ones :-)

    Cry when you need to cry, scream and shout when you need to, and smile when you feel like it!!

    Big hugs to you

    Emma xxx :-)

  • FormerMember
    FormerMember

    Hi motherofone

    what you are felling are normal  after my first FEC i felt very much like an outsider in my own body that an my tongue felt to big for my mouth but after that i felt ok (in a loose sense of the word ) but it was much better that i thought it would be and i'm now at the other side and still smiling if you need to chat message me, all i can say is listen to your body sleep if you need to and take care together we will all beat this x

  • FormerMember
    FormerMember

    Morning motherofone,

    Don't beat  yourself up, fec is doing a good job of that for you.  The fec regimen if a very strong 'poison' being put into your body and it literally wipes you out.  Unfortunately I only had one dose and nearly died so couldn't have chemo in the end.  Your family need to know exactly what is happening to  you so they can understand and  not feel its their fault you are so restless.  Try to take one day at a time and do perhaps just the one thing each day that is a good  thing - the household tasks will have to take bottom place and your treatment comes first.  We all react differently to this medication as we are unique so good luck.  You can get some difflam for your mouth and don't be afraid to take anything the consultant prescribes to help you cope with this medication.  Just come onto the site and get everything off  your chest and we will support you - we've all been there, done that and some are going through the same right now.  Take care, I wish you strength.  Ann  

  • FormerMember
    FormerMember

    I had the exact same restlessness with Fec I would literally pace up and down the first day of having it.The feeling sick i had too but was never actually sick.My tongue was horrid throughout all my treatment and i just looked forward to having my taste buds back again and all the food i would be able to eat and taste again.

    Be kind to yourself when you are feeling low and let others know how you are feeling if you can.It's hard there is no denying it but time passes and before you know it you will have finished and will start dealing with life after cancer.

    mx