Rhabdo(whateverthecrapitis) part three

Less than one minute read time.

Well, today's review at the Royal Marsden Fulham Road was a shock! Once again I thought I'd be told that the recent surgery I've just had would be enough to cure me. No, life is that not kind. I have been told that this nasty agressive cancer needs an equally agressive form of treatment so it's straight to chemotherapy for me. A CT and PET scan, plus bone marrow biopsy will decide what type. Ho hum. Will lose all my hair and will probably not be able to have any more children. But...my hair will grow back and I already have two beautiful children so all is not lost. I'm just so shocked. I thought I might need possibly need radiotherapy but the prof told me before my 2nd op I wouldn't need it. Got two drugs lined up for me ifosfamide and doxorubicin. The joys of spindle cell rhabdomyosarcoma sieze to amaze me. This time it's war...lightsabers to the ready.

Anonymous
  • FormerMember
    FormerMember

    Thanks Lizzie and Lisa. x

    Made a decision to chop all my hair off today before I start chemo. It's now as short as Gwyneth Paltrow's in Sliding Doors (love that film!!). A huge change from my long locks. I cried a bit while waiting the 20 mins for my appontment. Made it all the more real I guess. But in a way was glad to see it all go. It was starting to annoy me. Knowing it's all going to fall out made me anxious to know what I'll look like with little and then no hair, so my curiousity got the better of me. My sis was there with me and helped me chose the hairdo in the mag. Got my PET scan booked for monday and MUGA scan on fri. It's all go go go! xxx

  • FormerMember
    FormerMember

    Brave decision and I agree very good film. My radiotherapy starts tomorrow 60 sessions to look forward to with weekends off for good behaviour. Its go go go for me also. But good once its started cause then we can look forward to treartment ending and then back to normal.

    XX

  • FormerMember
    FormerMember

    Wishing you all the best lisa. Sorry I din't get back to you...been all over the shop back here. THinking of you and hope everythings going ok with your RT. Wish I could fastforward the next 6 months! xx