Rhabdo(whateverthecrapitis) part three

Less than one minute read time.

Well, today's review at the Royal Marsden Fulham Road was a shock! Once again I thought I'd be told that the recent surgery I've just had would be enough to cure me. No, life is that not kind. I have been told that this nasty agressive cancer needs an equally agressive form of treatment so it's straight to chemotherapy for me. A CT and PET scan, plus bone marrow biopsy will decide what type. Ho hum. Will lose all my hair and will probably not be able to have any more children. But...my hair will grow back and I already have two beautiful children so all is not lost. I'm just so shocked. I thought I might need possibly need radiotherapy but the prof told me before my 2nd op I wouldn't need it. Got two drugs lined up for me ifosfamide and doxorubicin. The joys of spindle cell rhabdomyosarcoma sieze to amaze me. This time it's war...lightsabers to the ready.

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  • FormerMember
    FormerMember

    Hi Mei,

    My thoughts are with you tonight,look after yourself.

    Take care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember

    Hi mel

    thinking of you but the fight goes on girl

    love and hugs

    jenxx

  • FormerMember
    FormerMember

    Thanks Sars and Jen. Been really teary all day. Already got the PET scan booked for monday. It's the bone marrow biopsy that I'm not looking forward to...Got to tell the kids on sunday. Got my Macmillan (hot to tell the kids' book at the ready but it makes me so sad the thought of it. xxx

  • FormerMember
    FormerMember

    Hi Mei,

              Sorry to hear that you have to have chemo when you were not expecting it , but you have the right attitude. Hair does grow back ( I have lost mine 3 times) and your two beautiful children are a good reason to kick this disease into touch and get on with your life. You also have a sense of humour which is a great asset  and I wish you all the very best  for the weeks and months ahead.

           Thinking of you,

              Love lizzie xx

  • FormerMember
    FormerMember

    Agessive   ppfftt Im sick of hearing that word. Im sure we are more agressive than this nasty disease that is trying to take over our lives. I know what you mean about telling the kids its the hardest thing I have ever done but glad i did. It helps when evryone close around you knows the whole truth, its best they hear from you than listening to snippets of conversation when you are on the phone or have visitors. Keep strong xx