i'm neutropenic

1 minute read time.

tut! sigh! back in hosp at the local DGH as had a fever early hours of sunday morning and a temp of 38.7oC.  Blood tests showed i had zero white blood cells therefore neutropenic, so got fasttracked to a ward and now in my own room as my immune system is so  weak. was given IV paracetamol to bring temp down but last 24 hours were the worse as it felt like i had tonsilitis. the pain turned me into a gibbering wreck. i cried and winced in pain with every mouthful of yoghurt i had. that was the most painful meal i've ever had, a part from the time i accidentally pierced my throat with a wooden stick while jumping off a shuttlecock climbing frame on my 13th birthday and was too scared to tell my parents so sat there watching Dukes of Hazard trying to eat a salt and vinegar crisp sandwich of all things until the pain got the better of me..anyway....

normal paracetamol didn't help, nor codeine, not even sodding OraMorph, but thank god for IV paracetamol! saved my day. now i can eat food with lumps in it. can't taste a thing mind, this cheese and onion sarnie i'm eating now tastes like pva glue, but i'll go with that for now.

saw my haematologist earlier. says i'm not leaving this joint until i start producing white blood cells again, my temp goes down and my bp gets higher. having antibiotics IV and injected via my stomach. meant to be starting my second chemo cycle at RMH next tues...so much for my respite from all this.

on a more positive note my charity head shave went really well on saturday. was an emotional evening but i needed to do it. so far i've raised £790. xxx

Anonymous
  • FormerMember
    FormerMember

    Hi My Friend,

    Bad way to start the week on Sunday. But you are in the right place. Glad of 4 paracetamol, Im glad it eased the pain well Mei thats 12 yrs just gone by without me being able to taste or smell I can even chew my pills all 30 of them every day and the taste is always the same . Ho Hum never mind. Im

    sorry about your hair but delighted that you are raising so much cash for Cancer your a GEM.

    Take care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember

    hi sarsfield

    30 pills, every day? Gosh that's a lot. i'm so sorry you can't taste or smell things. how awful. i imagine after 12 years you're used to it but what smells do you miss the most? i should be glad i can still taste and smell food, even though it all tastes synthetic and i gag when taking chalky pills.

    i must admit i'm used to my hair now. what shampoo do you use if any?  my mum will have a shock when she visits me later as i rightly or wrongly didn't let her know i had my head shaved.

    big hugs back at ya!

    love mei xxx

  • FormerMember
    FormerMember

    hi hun was just going to message you to find out how the head shave went for gods sake youve so had a time of it babe glad your on the mend now though where did you pick up the germs ??? ive got a bad cold and cough and chemo is on friday and thought i was miserable i wont complain hun so hope you feel better soon will be thinking of you poor wee thing but stay on here and keep in touch chin up girl love and hugs jen xxxxx

  • FormerMember
    FormerMember

    Hi Mei,

    Well to tell you the truth I shave my hair once a week it saves me a fortune in shampoo and

    Hairdressers. Im a right miser. I hope your Mum dosent shout at you for not telling her. You take it easy and look after yourself.

    Take care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember

    Mei hope you are feeling better you have been really put through it i never texted as i did not want tro disturb you as i know you are in a lot of pain ..hope all your meds work and you get some respite from all this .

    I go to get my mask made tomorrow then some plan thing on thurs ...then back in for chemo on the Fri the 29th until Thurs ...I hope i get out then .and then it all kicks off ...will only have about a week to feel better .

    let me know whats happening to you ..well done on the fundraising front ....

    God Bless

    Love and hugs

    Jan x