If only I could get John out in the fresh air!

1 minute read time.

It's been a strange couple of days. 

Yesterday was the pits.  John was too poorly to let the palliative care nurse bathe him this morning and sat around in his pyjamas all day.  It wasn't the pain or sickness, he said, just a 'strange' feeling in his tummy area.  He was also very down in the dumps and I swear it's partly because he's stuck in the flat all day just moving from the bedroom to the dining room to the lounge and back again, if you know what I mean.  Not much of a life but he simply doesn't feel up to tackling the stairs.

We're being assessed for a stairlift on 3rd August but no guarantee whether we'll be approved or not.

Had a short visit from my daughter and son-in-law, but otherwise no-one came near us so I couldn't go out either.  Felt really trapped.

Today was better because John's daughter came this morning.  I'd made a big cottage pie for lunch and John ate quite a bit.  He's been in a lot of pain today and feeling very groggy but slightly more cheerful.  Jo and I put our heads together over how we could get him out but couldn't come up with anything.  I even thought of renting a small house so he could go into the garden on fine days but there would still be the problem of the dratted stairs and not many rentals allow pets.

I did 'escape' for a couple of hours with little Gemma and she had a lovely run and chased after her ball.  We shared an ice cream and then walked around the local market and charity shops before having a cup of coffee.  If only John could have enjoyed it with us.  :0(

A MacMillan nurse visited this afternoon and has upped his pain meds again.  I hope that will do the trick because he is still in great pain in the mornings.  She spoke about admitting him again but he's adamant he doesn't want to go and I will abide by his wishes. 

Take care everyone.  Madge x x x x x

Anonymous
  • FormerMember
    FormerMember

    Hi Madge,

    I wish I could give you my  bungalow with its little garden so much.... if I could, I would!

    Hope you at least get the stairlift will keep my fingers crossed for you... If you get too down, you know what to shout out... ;-)

    Lots of love and a big box of choccies to you

    Little My xxx

  • FormerMember
    FormerMember

    Hi Madge,

    I'm so sorry to hear that John is still in so much pain.  I really hope they can get it sorted quickly.  I would think you will qualify for the stairlift as my mum was given one and I must admit it was a Godsend.  I'm off on holiday for 3 weeks but will try to get in here and see how you're both doing if I can get internet access.  Take care of yourself.  Sending lots of love and hugs to both of you.  God Bless Caroline XX

  • FormerMember
    FormerMember

    (((Madge))) ive been thinking of you and John. I really hope you can get that stairlift.

    I am hoping for a better day for you both tomorrow

    Much love scarlet xxx

  • FormerMember
    FormerMember

    Dear  Madge,

    How I feel for you (and John) and I know how it feels being helpless to do anything that really makes a big difference. However, you ARE making a huge difference for John and his quality of life, even though you don't feel as though you are right now.

    If John's MacMillan nurse is saying he should go back into hospital to get his pain meds sorted out - ask for another nurse or pain specialist nurse.(The District / Community nurses are usually very good at this). John obviously does not want to go back into hospital and, so long as you are willing and able to have him at home, there is no need for him to do so. There's a lot that can be done at home to relieve pain and I hope that this is the case for John soon.

    Madge, make the most of the good days and I hope that something can be sorted so you can get John outside in the fresh air, if that's what he wants too. Please keep us posted when and if you have a spare couple of minutes. Thinking of you all.

    Take care. Love and hugs, Rose x x x ((((((((((hugs)))))))))))) x x x

  • FormerMember
    FormerMember

    Dearest Madge

    How I feel for you both. Did hope that Johns pain was sorted and sad to find he is bad in the mornings. The stairlift would help so much, I have everything possible crossed for you.

    Take care, love to you, John and Jo

    Shaz (((((((((((((((XXXXXX)))))))))))))))