Really good idea this site, I know how awful this disease is and must be the most horrible thing to live with but as a carer I think we are probably a little bit forgotton and taken for granted. Its nice to know there are others out there battling along and will read the blogs with interest. Keep your hopes up love Lynne
FormerMember
I agree with you - the despair, uncertainty and the mental distress this illness causes is unreal. My Mum is suffering and I love her so much I just want this disease to go away and allow her to rebuild her life again. I am snappy, irritable, not sleeping, don't do anything other than clean, worry and work. I don't enjoy anything any more. Can I just say love to all those who are suffering with this dreadful illness and strength and love to all the carers. Hopefully I can find renewed strength somewhere soon, I can't cope with anything at the moment. Sandy xxx
Glad to hear it from your points of view. Tip toeing around the elephant in the room is no good so straight talking and back to normality. He can pull his weight with the cooking again or direct operations! Off pedestal and on with life.
I too found it difficult, and still do though he is no longer a 'sufferer' due to a successful operation. Even now I find it difficult - will it come back/when will I feel better/I can't do anything you ask. Wel!!! He can clean the car!!
I'm at work full time - went back four weeks after he had the op and a week after he came home - mainly for my own piece of mind. 24/7 and I would have killed him. I am sure if it had been me I would have been up doing light duties long before. Its only because I've had this you want it you do it attitude with him that he has had to make an effort.
He says I am making him do more than he can but I need to push him to do things or he will not bother.
I could say a lot more but just thinking about it is enough.
Hi thanks for all the comments it does help to know that there are are people in the same boat. I feel as though I am being very selfish at times, I feel as though I need to be alone just to be me, however I love Barry very much and most of the time I just want to be there for him. We have a difficult time ahead he has a scan on 12th Feb and specialist appointment on 16th Feb. If the cancer has shrunk or staid the same the he will get another 6 lots of chemo but if it has spread then I think that may be it, she says they will try something else but dont know what. He has really done well on chemo (hasnt really had many side effects at all) and prozac has really helped him cope mentally, we just feel that at any time we will just walk over the edge and go into freefall just need to keep fingers crossed. Anyway enough about me good luck to everyone on this site lets hope we all get through to some brighter weather which Im sure will make us all feel better xxxx
