New to this site and could do with some help please.

Less than one minute read time.

Hi, This is the first time I've posted anything on here and I'm not quite sure what to do or how to do it.  My husband was diagnosed with oesophageal cancer, and also liver cancer, last Novemeber and has had chemo for that.  It seemed quite sucessful and he has had a fairly good quality of life for a good few months.  However during the last 4 weeks or so he has taken a turn for the worse and I don't know if it's his cancer or his mind that are playing up now. He has a pain in his right shoulder now and we're not sure what it is.   He's going for an x-ray Wednesday or Thursday to see if we can find out whats happening. Finger crossed that it isn't anything too serious.

Anonymous
  • FormerMember
    FormerMember

    I know it's hard but you need to ask the right questions. I would question whether an xray is good enough - I would have thought he would need a full MRI. You need to get hold of someone who is treating him - oncologist - and tell him that you are not happy with what is going on. I have found that in some areas the medics make an unholy mess of things and in others they do a great job. Postcode lottery comes to mind. Get on to the onco and don't take no for an answer. If he gives you the runaround get hold of a Macmillan nurse and get them to intervene and if that doesn't work make a full complaint to the hospital board. The number of times people get left to their own devices is disgusting,

    Good luck, and let us know how you get on.

    love

    Drew

    X

  • FormerMember
    FormerMember

    Thanks Drew,  I probably haven't made myself very clear.  He had CT scans and PET scans last Novemeber when he was first diagnosed.  But today when our GP came out to see him he (the GP) thought that he (My husband) may have Plurisy so that's the reason for the x-ray.  Sorry if I misled you.

    x

  • FormerMember
    FormerMember

    Hi Lizzy,

    I just wanted to welcome you to the site - sorry you had to join.  Just wanted to say, considering  you weren't sure what to do, you did it all right!!!!!

    Hope you find some people with direct knowledge of the cancers you darling husband has and can give you the support and information you need.

    Love & Strength

    Debs xx

  • FormerMember
    FormerMember

    Hi LIzzy,

                I don't know much about your husbands particular cancer but I do know  that once you have had this disease, any continuous pain sets the alarm bells ringing, so you are doing exactly the right thing by getting it checked out.

                 Fingers and everything crossed that it is nothing serious and let us know how things turn out. Remember you can come on here to ask questions, share worries or just chat. There will always be someone to give support.

                   Take care,

                         Love lizzie xx

  • FormerMember
    FormerMember

    hi lizzyflip - congratulations you posted your first blog !

    and yes i will keep my fingers crossed for your hubby too!!!!!

    (((hugs))) for you both xNx