When you sky is falling take my hand I'll hold it you don't have to be alone

2 minute read time.
My darling daddy is
disappearing in front of my eyes and there is nothing I can do about it.

Yesterday was truely dreadful, dad was a bit moody in the morning but nothing bad so mum went off to work at about 12 she got a call from our lovely neighbour to say Iain Rennie were outside and getting no answer should she go in so mum said no she would call, called three time no answer so called back and said yes please go in.

She went into find dad stuck half on and half off his bed in so much pain he couldn't move, sobbing and in as you can imagine a terrible state. Gill let the Iain Rennie Nurse in and they got him back on the bed and cleaned up (my god this is my dad I am talking about who is 56 not some old man!) and Gill called mum who came straight home with the doctor. Mum then called me in tears and asked me to go over.

I can honestly say I was shocked and devistated by what I saw my dad was in such a state - made worse by the fact that by the time I got there (I only work 5 miles away) the doc had given him massive pain killers and sedatives. I head his hand and told him it was ok whilst tears rolled down my face. We had to get him on the bed better as he was still right on the edge and sadly this meant a whole lot more pain for dad but we did it quickly with the help of the two iain rennie nurses an thankfully he did then settle a fair bit.

They wanted him into the hospice but couldn't get a bed so yesterday I stayed with mum and dad all
afternoon, hand feeding and giving water and helping your dad to the loo is not an experience I would wish on anyone but I don't feel mum can take it all on herself.

This morning he is in the hospice to be assesed and hoepfully stay in for a few nights on pain review. I don't want him in the hospice but after yesterday mum and I both agreed he needs to be where ever best to stop the pain. Getting to the hospice was a challenge in itself it took my brother, mum and me 45 mins to get him down the stairs, he has no idea where his feet are and so James had to help him get his feet down whilst mum and I support him and help him down, this isn't easy as he is so scared it is going to hurt when we touch him.

The doctor is worried about what suddenly caused such an onset of pain and he has suddenly developed a really nasty cough which could be an infection or the start of the lung cancer effecting his breathing. They are also worried he has fractured his upper arm where his bone met is.

I am afraid right now I am about as low as I can get and totally scared that we don't have very long left and can't see any chemo happening anytime soon.
Anonymous
  • FormerMember
    FormerMember

    Hi J,

    My thoughts go out to you and your Family at this time. I hope your Dad gets a placement in the hospice, so they can deal with his pain,and also to give you your Mum and Brother a rest bite.

    Look after eachother .

    Take care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember
    Hi J I'm so sorry to hear your Dad is in so much pain, you and your mum sound like you are doing all you can for your Dad, it's so hard to see it happening, I know I've been there too, my dad was put on Oxycodone. Through a syringe driver and it pumped pain relief over 24 hours it seemed to keep him out of pain. My Dad didn't want to go into a hospice so we cared for him at home with alot of help with district nurses, mac nurses, carers and marie curie nurses at night. Be strong. Sending you massive hugs and love. Will say a prayer for you and your family If you want to ask anything just PM me Siobhan X
  • FormerMember
    FormerMember

    so very  sorry your dad is in pain i hope the hospice can help him soon,

    my love and thoughts are with you and your family  hugs and love xxxxxxx  irene

  • FormerMember
    FormerMember

    My heart goes out to you all. This is a bloody awful disease which takes away dignity.

    Please be assured your dad is in the best place. The hospice will soon get him sorted with pain relief etc. Have they x-rayed his arm? If it has fractured it will be causing a lot of pain in itself.

    Will be thinking of you all.

    Best wishes, Christine xx

  • FormerMember
    FormerMember

    thank you all so much. still not clear on arm but have been told ct scan shows multiple tumours on spine and 3 fractured vertabra so that explains pain. went and saw dad last night and he ws ok bit shell shocked by news and out of it due to stuff given to stop pain during scan. back today and he was much brighter and happier. left him warching dvds on his laptop. still feel sas and drightened but pleased dad is comfoetable and much more relaxed in tje hospice.