No Man is an Island

1 minute read time.

On the bad days, in those times when we experience what some call 'the dark night of the soul,' it is hard to remember that we are not alone. It may feel as though that is so, but if we can reach out, however shakily, there is help and support.

My husband has had a very difficult week, not so much physically, more struggling with what's in his head. It really isn't that long ago he received his diagnosis, and after a period of denial he is slowly coming to try and face the reality of that diagnosis. It won't happen overnight. 

For the carer, there is not only the difficulty of preparing for what is to come  (whenever that may be) and trying to be strong for the family, but also having to stand by and watch a loved one struggle with accepting the Big Truth. I have no idea how I would behave in my husband's shoes. I find it hard enough dealing with my own realities. 

In my struggles, I am lucky to find a willingness to support from good friends who phone up, send emails or come to spend time with us. I also turn to this wonderful online community and am humbled by the readiness of complete strangers to send helpful messages and encouragement. Today, whilst my husband was having his chemo, I took myself off to Maggie's and had a chat with one of the lovely counsellors. 

Hence the title of today's blog post. 

LJ

Anonymous
  • FormerMember
    FormerMember

    Hi Little Jen,

    Your name made me pop in and say hi and you are right about Donne's words in all their meanings.

    You are not alone with macland... we are always here to support and hold your hand in those dark  nights of the soul... and in the sunny days too... as there will be some of those along the way.

    Just wanted to send  a hug from one 'little' to another 'little'

    Little My xx

     

  • FormerMember
    FormerMember

    Hi Little Jen

    You are so right about the kindness of strangers and the love and support you get here in MacLand.  I know what you mean about the 'messed up head'.  It seems that is one of the worst effects of this terrible disease and it is sometimes worse than the treatments for the sufferers.  My brother's head is so mashed up he can't think straight anymore and struggles daily with the concept of not being around for much longer.

    And it is the 'darkness' of those middle of the night tears and fears that are definitely the worst.

    Stay strong.

    Much love,

    Nin xxx

  • FormerMember
    FormerMember

    Hello Little My and Nin

    Thank you so much for your response to my post. Hugs are always gratefully accepted! And you are right, I know. There are and will be good days, good times or maybe just good moments and I try to recognise those when they happen. And you are both proof to me of the care and kindness of others.

    The thing I am trying to deal with and finding the most difficult is the mental knitting that comes with the cancer. Is it the illness? Is it the cocktail of interacting medications (and let's face it, some of those are fairly powerful chemicals)? Is it the treatment? Or most likely, is it a combination of all 3? I guess it doesn't really matter. The fact is, the body is not just a physical entity (though sometimes I think oncologists would prefer to treat it as such.) Inside the poorly body is a mind, a brain which is oh so amazingly clever. It can cause no end of havoc, and let's face it, who wouldn't feel despair knowing that there was only one end to an illness.

    I guess you could say that all of our lives are going to end. We all have the same future. But I think I'd rather live in blissful unawareness. Now, I could walk out of my gate tomorrow and be flattened by a car. But at least I don't have to think about that all the time. The wretched cancer makes its presence known most of the time. And that's the difference.

    Sorry. Didn't mean to be deep and dark. I was just saying what's in my head and this site gives me that freedom as I try to work something out for myself, in the hope that others may recognise what I'm talking about.

    I return to my original quotation which I used to reinforce the belief that I know I am not alone. And I hope that others of you who may be coming to terms with something difficult may also feel that they do not have to struggle on their own.

    Actually, I don't think I'm struggling.......just working things out. The little grey cells take longer to get a handle on things these days!

     

    LJ

     

  • FormerMember
    FormerMember

    Hi Little Jen, you'd better have some hugs then  eh?

    Excuse my language but I have always said cancer is the biggest head f*** going. No 2 ways about it... it messes with your head more than anything. I think carers and relatives have a really hard time of it as they are second guessing what the other person may be thinking or feeling. I know how I feel and am allowed to feel what I want if that makes sense. I can be happy and laugh my socks off which I do a lot, but as a relative, you feel guilty for being happy and are constantly worrying about how someone is feeling and when they say they are fine, you think, are they just saying that? or are they really fine? And you can't imagine what it must feel like to deal with things, while we just deal with it cos we have to... It takes a lot of thinking through and this site does help a lot with that.

    I wrote a blog called bumpy roads which was my way of coming to terms with things so far. If you ever feel like it, you could search for it... it may help, may not. Most of the other blogs I write are completely silly... as is most of what I write...  anyway basically my feeling was that it didn't matter how long your road was, what was important was how you walked it and we can all take a step over to hold someone's hand if they are walking a bumpy patch. I also decided that cancer may stop me being able to do things like put my socks on and it may make me incontinent, but it is damn well not going to make me live my life in misery and stop me from enjoying what I can... so I stick 2 fingers up to it and laugh (most of the time)

    Of course we all have those nights when you just want to scream into your pillow and you think your heart will break in two... but the sun burns those darknesses away and we learn to appreciate life in all its wonderful little moments that we usually miss... you see people are in blissfull ignorance of that bus, but I would suggest that bliss is the wrong word cos they miss so much hurruying around wishing their lives away...

    Rambling on again... you write and things will kind of sort themselves out for you and for the bits that don't, well, we are here for those times with a hug

    Have another hug, you need it after that ramble from me...

    Little My xxx