Sept 6th

1 minute read time.

Heart scan app today 11am to see if Ed can have chemo with Herceptin. Had a terrible weekend as he cant swallow more than a sip of water now, not eaten for 3 days. Sleeping most of the time but only shallow as the slightest sound causes him to open his eyes, then he is confused as to where he is and what time it is even if he just asked and there is a clock by him but he cant seem to be able to tell the time. Its a nightmare trying to keep the dogs quiet. and i have had to unplug the phone.

I rang his specialist nurse at the hospital to check if it was worth the pain for him to actually take heart scan. She said it was and i trust her. got a son to help and we got him there. They were running late, whats new! I made a fuss and ended up in tears but they got him in. had to wait 30 mins after first injection ( knew that, done it before) but it was so cold in the waiting room, Eds hands were white, more fuss, they put the heating on, then he went for a scan and i could hear him moaning. A nightmare for us both, what a mess, all this pain. Just feel a patient in Eds state should be treated better.Anyway back home in nice warm bed.

His specialist nurse said she would have results today and also she would see if there was anything to help his eating so I sit and wait for her call with my mobile on silent I will hold it in my hand till she calls, fingers still crossed for some respite for Ed.

Anonymous
  • FormerMember
    FormerMember

    Dear Leisha,

                    I do hope that you have received some good news from the nurse by now, as I can't bear to think of you sitting there with the phone in your hand. You are doing everything you can for Ed and I

    hope that things take a turn for the better really soon.

            Thinking of you both,

                 Love lizzie xx