July 25th

Dear Leisha, I hope you get some answers soon, Ed shouldn't be in pain. Sometimes the local hospice is a good option for palliative care - my step-dad was terrified of having to go back to his local hospital, and luckily his hospice operated a 'home care' service, which was very helpful. Thinking of you, and sending hugs. Val X

Thanks Val, just been reading about Avastin and am going to see if that is a possibility to gain some valuable time, what good are savings if you loose your beloved?

Hi Leisha,

Time to stop talking. Go straight to the head honcho who is looking after Ed,and kick up a stink.

If they dont listen find someone who will.There is no way Ed should be in Pain in this day and age of Medicine.Good Luck Mate you will probably need it.

Take care and be safe Big Hugs Love Sarsfield.xxx

Hi Leisha

I’ve only just seen both your blogs as I don’t always look through the blogs, and very seldom reply to them.  Anyway, you’re right about it seeming like deja vous, because I remember this time last year that Ed had a similar problem.  I’m really sorry that he’s again suffering like this, and what strikes me the most is that Ed would rather suffer terribly like this than go to A&E and to ward 34.  Surely it would be much better for him to go there and be treated rather than being in this terrible pain for all that time.  The five pound weight-loss in one week is pretty drastic and definitely needs to be assessed.  I feel sure that if you went along to A&E Ed would get the treatment he needs and the pain managed properly and then he’d feel so much better.  Without treatment the pain will just gradually become worse, so the sooner he can get to see a doctor, so much the better.  I’m sure Ed will be able to manage another holiday once his pain is under control, so do call either A&E or your GP for a quick referral, or as Val has mentioned, the hospice home care service.  You shouldn’t be worrying like this and I’m worried for you, so do give one of those a call.  

Sending you big hugs Leisha, and let us know how you get on.

Love Crystal xx  

My man is so stubborn. He would rather suffer than go to hospital and, remembering last year i can see his point. My hopes lie with the macmillan nurse but yet again Ed wont go near the hospice itself. Brother in law did and he died in Feb . I pray we get quick scan then treatment. Ed forgets or wont have it that I suffer too, I so want him to have yet more time. Many thanks for your support , it keeps me sane, well almost. xxx