tonsil cancer....chemo journey day 4!! xx

1 minute read time.

23rd september  -- well another good day!! spent it up the hospital with trev. sat out in the 'beer garden' haha..was lush!! he looks so so well. dont know how long this gonna last!! he has less pain tho in his  neck and tumour. and the tumour is actually smaller than it has been! still big to anyone else..but to us it has deffo shrank a little near his ear.

he s full of energy...still got an appetite which is good. later this afternoon his peg has started to ooze....hot brown liquid!! docs think its the amoutn of coffee he s been drinkin. so he s back to water!! peg nurse gonna come and have a look tomorro.

spent all of out time out of the ward...its a bit depressin...he s soo young and lots of the gentlemen in their are a lot older and much more sick. he gets on well with them like...calls them THE LADS!!! bless. must be hard for them.and him really too! he s only 37. he s been goin to smiths and gettin them their papers.!! lol

well tomorro im goin up there again....we goin to the macmillan coffee mornin. shud be nice. then sat im back again....goin  later on ..early evenin..then we can sit int he lounge area and chill!! alternative sat night out!! hahaha

gotta make the most of it!! we treatin him being there like 'dates!' works for us!!

hope everyone well

big love to all

lisa xx

Anonymous
  • FormerMember
    FormerMember

    Hi Lisa,

    Good to see Trev is in less pain. Its good to see you can manage up to see him as many times as you do. You will both need eachothers support in the coming weeks. All the best and God Luck.

    Take care and be safe Big Hugs Love Sarsfield.xxx

  • FormerMember
    FormerMember

    Hi Leeset, got hooked on reading your gloggs lol, so glad everything is going ok, glad for you both, romantic night on saturday then hun watch what you get up too. xxxx

  • FormerMember
    FormerMember

    hiya sarsfield and suzie ann

    thanks so much for yr messages; love em!! yeah up to now.....everything is well cool. under no illusions that the tiredness and the discomfort will prob kick in soon....but at the min he feels brilliant and that helps us i spose. was a little upset earlier..was chattin in the online room..just few in...someone asked how things were etc...and i was just askin is it normal to feel sorta 'up' when on chemo....the colour in his cheeks, appetite etc etc...i genuinely dont know!! and was sooo surprised how negative everyone was!! i just got,,,,enjoy it now coz it wont last! the chemo he is on is awful! get ready for him being grumpy! he ll some crashin down to earth etc etc.     just really got to me! i ve been nothing but supportive of people on here and i was really taken aback!! maybe im being heartless i dunno!! was just chatting!  i know some people have better days than others...im a 39 yr old mam...im not daft!! i was just a little taken aback. not been in again!!

    anyways...rant over!!!

    thanks again

    llisa xx

  • FormerMember
    FormerMember

    I think it's really important to enjoy the good times absolutely to the full.  Tougher days may be round the corner, but why dwell on that now, and miss the opportunity for some simple pleasures now?  It's too easy to pre-live the future, instead of being fully in the present.  Good for you for taking every scrap of humour and happiness that you can find at the moment.  If harder times come, you'll have built up a handy bank of memories to draw on of lighter moments together.  Take care - do enjoy your blog, you write with so much verve.  Cathy XXX

  • FormerMember
    FormerMember

    thank u cathy....that was a real lovely message.  for us, tackling it how we are is workin ..not for everyone but is for me and trev.  we only young.ish! and yes we have real serious moments and real deep talks etc..but we enjoy our lives together....and want to make the most of the here and now and also to th future!! i dont think there s anythin wrong with that...i like it !! : )

    he doesnt wanna come on here or anythin..so i pick up bits and pass em back to him !! i tell him about who im chattin to etc and he likes it!! he doesnt know im keepin a diary of blogs.....not that he wud mind like.....he d just say if it helps me and also others get somethin from it then its cool.

    we gettin worse u know.....we ve renamed james cook hospital..jimmy c's!! reckon it sounds like a cool bar!! lol . the tearooms outside area is the beer garden!!! lol we not trivialising things.know got hard times ahead but just gotta keep going!!!

    really take comfort from the messages left on here..and glad u like me blogs!!!

    love lisa xx