Kezzerbird....not my normal self at the mo

1 minute read time.

I don't often moan or winge on here but at the moment I am worried and I just need to put it down, I don't want to say anything to my family just yet. I have a lump which I found last night near to where my right ovary used to be. When I was diagnosed with Ovarian cancer in March of 2008, the cancer and massed on the muscle wall close to the ovary and after many cock ups by the hospital, with 3 months the cancer had filled my womb, bowel, stomach and ormentum, so I had 5 cancer to fight off, which I did, much to the amazement of my medical team who expected me to die. After a wonderful year in remission the cancer returned in my stomach, it was expected and I knew that, I know what my out come will be and have accepted that. Once again cock ups are happening, my treatment has gone to pot, it should have been over and done with many weeks ago and I should have also had my scan and the results back but on Friday I am geeting chemo 4 out of the six. Now this lump has appeared and I am thinking that do I have to pay the price again as before because things weren't done as they should have. It was my instinct that told me my cancer was back and I was right other wise I would never have known what was going on. I now have to demand a CT scan to see if my cancer has spread yet again and if it has S**T will hit the fan, my cancer was very aggressive last time and they knew that, I can fight the cancer but I shouldn't have to fight my medical team too, I have given this bloody desease a run for its money and will continue to do so and I know it will get me in the end but all I am trying to do is survive that bit longer, I have only just started to live my life, so it can sod off. I just needed to get this out guys, will see my Onc tomorrow and will have to take it from there. ...Love and hugs to those that want them as always....Carol x

Anonymous
  • FormerMember
    FormerMember

    Good luck with the oncologists.  I know it's tricky to complain while still undergoing treatment but is it worth writing in now to the hospital - cock ups are not acceptable in vitally important treatment situations, especially when they appear to be repetitive!  Maybe you could ask for your letter to be seen by the senior management but your name not fully revealed to the treatment team if you were at all worried about treatment being compromised - which of course it should not be!

    I've had a bit of a time with the admin side of things - two appointment letters never got to me during the surgery time, and my PICC line nearly didn't get attempted as no one booked me in.  The Groshong took a bit of hassling as well - I seemed to be on the phone every 5 minutes!  My medical team are great (though I find it hard to talk to the oncologist - he is just so keen to rush me out of the room ready for his next pt) but the adminny side of things drives me bonkers!!

    Take care and thoughts with you.  Vicky x

  • A bit late as I was not around yesterday but print off the T shirt logo, put it on his desk then kick ass.

    One of indie's spare lifejackets heading your way instead of the padded jacket.

    cannot wait to hear how you got on.

    take care

    john

  • FormerMember
    FormerMember

    Dear Carol,

                      Just wanted to to add my love and very best wishes to that already expressed. I am thinking of you and hope that they listen and then act! You are my inspiration and deserve the best

                          Take care,

                               Lots of love

                                        lizzie xx

  • FormerMember
    FormerMember

    sending lots of hugs and I know you are strong and will fight this.  Thinking of you, as Lizzie just said, you are an inspiration!

    love Bren

  • FormerMember
    FormerMember

    Hi Kezzer,

    I hope that your onc got what was coming to him.

    At Last.

    Thinking about you.Our thoughts and strength and love.Hope your instinct is wrong. Big Hugs.

    Sarsfield and Mrs S.xxx