Kezzerbird..........give me strength!!!!!!!

1 minute read time.

I saw my consultants understudy and the cancer nurse, not happy, this girlie checked me out, I had to make it clear what was going on with me and this new lump....off she went, then my Onc appeared 'Oh your hair is growing back well' says he. I haven't bloody lost it yet, says I, 'Well you should have with Cisplatin and Estopeside' says he. followed by, you need to have a scan and we need it done today so we can see what is going on. Had he even examined me NO, had he asked me what was going on NO, did I get my scan YES, did I get the results SORT OF.

The scan wasn't read by the person who is qualified to read it, the onc and his side kick read it, he was pleased OH GOOD. His says the tumours have shrunk in my stomach and this lump had been there all along and it had grown DOH! Then I was asked what treatment I'd had. Now this came from the man who has been my onc from the word go (March 2008) and he is asking me what treatment I have had, he hadn't got a clue, he didn't know why I had to go on a break for 2 weeks either and yet when I told him that was what he wanted I got 'oh was it' So now I have having 3 of the same chemos which= 1 cycle, that is one a week and that should be treatment done (YEAH RIGHT!) I shall wait to see how long it takes to read the scan and I want to see the last 2 to compare them for myself. So much more happend but I am both physically and mentally worn out and need to go to bed, I have chemo a 8.20 and will finish by 6,30. I really am being treated like an idiot and I am far from stupid. I was also told that my stomach is full and I look constipated! I am s**ting for England, I know when I am constipated. I will not let this rest and they should know that I won't. Love and hugs to those who what them....Carol x

Anonymous
  • FormerMember
    FormerMember

    What a total waste of space this Onc is. Doesn't he or his sidekicks write in casenotes, doesn't he read them before seeing his patients, does he know what planet he's on? God it must be so bl**dy infuriating.

    Love and strength Carol

    Angela xxxxxx

  • FormerMember
    FormerMember

    Words fail me Carol,it's time that Hospital, and it's staff got themselves sorted. keep pushing them my 'andsome.

    Love

    Tony x

  • FormerMember
    FormerMember

    Hi Carol

    I feel so sorry for you it makes me think of the amount of times they have screwed up for my daughter if they had got it right she wouldn't have had to have her Thyroid removed because of her cancer she also has heart problems and all the time they get things wrong I wish that some one could pull them up and make them stop putting patients in danger.

    You are doing well but could do with out all the extra stress they are causing you.

    Take care

    love

    Maureen xx

  • FormerMember
    FormerMember

    Bl**dy hell Carol, your onc sounds like an idiot. He should have read your notes and had them in front of him.  No wonder you feel worn out and fed-up. Hope you can rest before chemo tomorrow and that everything goes well. You will push for answers I know, but you shouldn't have to and this sort of incompetence makes my blood boil!

              Don't let the b****rs get you down,

                        Lots of love,

                                   lizzie xx

  • Have your bucket of tea, dust yourself down and off you go for the next round, on a more serious note have you thought of involving the PAL's service to see if they can give your onc a bloody good kick and get you the care you need and deserve.

    It really pee's me off when you realise its still a lottery depending on who your docs are, it should not be like this.

    If only they could walk in your shoes for a day.

    stay strong

    john