Round 1 of chemo and scalp cooling!!

1 minute read time.

Hiya well yesterday i had my first round of chemo (epirubicin) and experianced scalp cooling.

Well just for once the hospital was running on time :-) there was a few tears because the nurse said my hickman line wasnt in the right place and was to far down.... then she didnt know if they could even use it as it had only been 48 hours since having it put in!!!

Anyway, i got set up on a drip the nurse then sprayed my hair with water and rubbed the conditioner in, we counted down to 3 and put the cap on my my head..... I laughed and said omg is this it?? lol it wasnt until she tightened the cap that i felt how cold it was. It was excruciating those first 15 mins thought my head would explode... at -5.9 0c!!! But i kept thinking of my daughter who is so scared of mommy having no hair and told myself not to be a wimp lol :-)

So side effects of round 1 havent been to bad, so far!! felt a bit sick last night and pretty bad cramps in my stomach legs and feet but it didnt last long and keep getting a dodgy taste in my mouth.

I always remind myself just how lucky i am to of caught this in time and it seems to help me through each hurdle, i stick my fingers up to the disease it to get through each day :-)

Hope your all well,

Emma xx :-)

Anonymous
  • FormerMember
    FormerMember

    Hi, thats fantastic that they are changing your anti sickness meds, im asking for something stronger next time aswell. The tiredness is bad enough but feeling sick when you have kids to run around after isnt good!!

    Im so sorry that you have almost lost all of your hair, have you tried out your wig yet??

    So far so goos and i havent lost any hair, although they said it would be 14 days after my first chemo so wednesday is D-Day for me :-(  My mouth is awfull my gums are so swollen and still bleeding pretty badley had to go and buy a babys toothbrush!! Im struggling to eat now thought because my teeth are so sore!!

    However, regardless i went round to my mates saturday and even though they said i would go off the taste of alcahol... so far so good lol :-)

    Whens your next round of chemo? wed?

    Love Emma

    xx :-)

  • FormerMember
    FormerMember

    Lol - yes we need a drink now and again! Next chemo Wed. Luckily I havent had too sore a mouth yet. They gave me a mouthwash to use if I had ulcers Did you get some? As well as that they gave me diarrhea meds and constipation meds but l havent had to use either yet thank god.

    Although I've lost my hair it doesnt bother me as much as I thought it would. I'm wondering if / when eyelashes and eyebrows fall out - I think that will be harder to cover up. I am keeping my fingers crossed for you that you keep your hair.

    love

    Maxine x