Round 1 of chemo and scalp cooling!!

1 minute read time.

Hiya well yesterday i had my first round of chemo (epirubicin) and experianced scalp cooling.

Well just for once the hospital was running on time :-) there was a few tears because the nurse said my hickman line wasnt in the right place and was to far down.... then she didnt know if they could even use it as it had only been 48 hours since having it put in!!!

Anyway, i got set up on a drip the nurse then sprayed my hair with water and rubbed the conditioner in, we counted down to 3 and put the cap on my my head..... I laughed and said omg is this it?? lol it wasnt until she tightened the cap that i felt how cold it was. It was excruciating those first 15 mins thought my head would explode... at -5.9 0c!!! But i kept thinking of my daughter who is so scared of mommy having no hair and told myself not to be a wimp lol :-)

So side effects of round 1 havent been to bad, so far!! felt a bit sick last night and pretty bad cramps in my stomach legs and feet but it didnt last long and keep getting a dodgy taste in my mouth.

I always remind myself just how lucky i am to of caught this in time and it seems to help me through each hurdle, i stick my fingers up to the disease it to get through each day :-)

Hope your all well,

Emma xx :-)

Anonymous
  • FormerMember
    FormerMember

    Hi Chrissi and Emma,

    My hair started to fall out last night, already it is noticeably thinner so I think I will go to the hairdressers tomorrow and get it cut really short.

    Chrissi I am sorry to hear that you developed secondary cancers. I too am Her2+.

    I am having 6 lots of FEC then Herceptin for a year after that. Good to hear that there are not the horrid side effects on Herceptin, but I am shocked that even after having the chemo, rads and H that you developed secondaries. Do you mind if I ask where they are? What follow up scans or tests were they giving you after October 08? And what is the prognosis? I thought they had had very good results with Herceptin?

    Good luck with the treatment anyway - let's  hope we can all beat this thing!

    love

    Maxine

  • FormerMember
    FormerMember

    Hiya,

    Well on my letter from hospital it says im Hormone negative???!!! After reading your stories does that then mean im in a good position as its not in my hormones or something??? All i know is that after chemo ive got 3 and a half wks of radio then im on tamoxifen for the next 5 years!!

    Love,

    Emma xx :-)

  • FormerMember
    FormerMember

    Hi Girls,

    Went to the hairdressers for the chop today. They are lovely people there and we discussed if it was just better to shave it off or have it cut short. They thought it would be too traumatic to go straight to shaving it off so she cut it into a nice short style for me but I will probably wear a hat too as it is falling out everywhere. They refused to charge me for the haircut and insisted I still visited them just for coffee until my hair grows back and we all hugged it was quite emotional. Aah.There are some lovely people about.

    Emma you said you are hormone negative and I dont know exactly what that means but I'm sure it's better than being Her2+ as the chances of getting secondary cancer with it is so high.

    When I go to the oncologist on Fri for my review I'm going to ask what my future prognosis is. They never did anything with that adjuvent online that I've heard people talk of - Chrissie were you ever told that?

    Hope you are all feeling good today.

    xx

  • FormerMember
    FormerMember

    Hiya,

    How lovely of the hairdressers to do that for you... i also had a free haircut :-) Its nice to know that they spent some time with you through such a difficult time!!

    Ive also asked about the future, and their answer is.....

    " Were confident that we got it all in time"  well i want to hear that its gone and im never going to get it again lol i guess theres only so much they can tell us as to whether were likely to have cancer again and thats just something i will have to learn to live with, aint like they can predict the future (unfortunatley) :-)

    Let me know how you get on friday

    Love Emma xx :-)

  • FormerMember
    FormerMember

    Hi Emma, Friday went OK, they are going to change my anti sickness meds for something stronger and more expensive next time so I'm keeping my fingers crossed that it's not too bad.

    You could say all my hair has gone now - there is so little left it's not worth mentioning but I look like an old granny.

    How is it going with you Emma? has any hair fallen out at all?...I've realised your chemo is exactly a week after mine so I'll be able to keep track.

    I'm feeling nervous about it already.

    Love Maxine x