Round 1 of chemo and scalp cooling!!

1 minute read time.

Hiya well yesterday i had my first round of chemo (epirubicin) and experianced scalp cooling.

Well just for once the hospital was running on time :-) there was a few tears because the nurse said my hickman line wasnt in the right place and was to far down.... then she didnt know if they could even use it as it had only been 48 hours since having it put in!!!

Anyway, i got set up on a drip the nurse then sprayed my hair with water and rubbed the conditioner in, we counted down to 3 and put the cap on my my head..... I laughed and said omg is this it?? lol it wasnt until she tightened the cap that i felt how cold it was. It was excruciating those first 15 mins thought my head would explode... at -5.9 0c!!! But i kept thinking of my daughter who is so scared of mommy having no hair and told myself not to be a wimp lol :-)

So side effects of round 1 havent been to bad, so far!! felt a bit sick last night and pretty bad cramps in my stomach legs and feet but it didnt last long and keep getting a dodgy taste in my mouth.

I always remind myself just how lucky i am to of caught this in time and it seems to help me through each hurdle, i stick my fingers up to the disease it to get through each day :-)

Hope your all well,

Emma xx :-)

Anonymous
  • FormerMember
    FormerMember

    Emma were you offered the cold cap? My hospital haven't mentioned it. I'm going today to find out what chemotherapy I need, had my mastectomy 2 weeks ago.

  • FormerMember
    FormerMember

    Hi Emma,

    Would like to compare notes with you as our conditiions sound similar. I had round 1 on 3rd Nov FEC chemo.

    Not sure how to correspond am new to this site.

    Maxine

  • FormerMember
    FormerMember

    Hi Emma,

    My sister used the cold cap twice..in 2005 & 2008 & both times, although she thinned slightly on top, she kept her hair. She even used to nod off whilst wearing it, so you do get used to it.

    I'm pleased the side effects so far are mimimal..long may it continue!

    Best wishes to you & hope the rest of your treatment goes well..

    xx

  • FormerMember
    FormerMember

    Hiya Helen, the nurses told me that they really wanted me to see if i could handle the scalp cooling as they had such fantastic reults with it!!! If they dont offer it you then ask about it, whether it works or not i wont know for another 2 weeks but if you dont have nothing else better to do in the day then you might aswell try it :-) xx

    Hiya maxine welcome to the site, im also quite new to all this and if theres anything i can help you with then please feel free to ask :-) xx

    Hiya Mamalade, it so nice when i hear of success stories!!! To be honest had my chemo of consited of the 6 months being epirubcin then no way would i of bothered with the scalp cooling, however, im only having 4 rounds of it and as both my kids are at school, anythings got to be better then watching more jeremy kyle and loose women lol :-) xx

    Emma xx

  • FormerMember
    FormerMember

    Hi Ya Emma,

    All the very best with your treatment. Hope your cold cap works.Yes its nasty that metally taste in your mouth, but it wont last. All the best and good luck.

    Take care and be safe Big  Hugs Love Sarsfield.xx