Well i waited about all morning for 1pm when id be able to phone the liason nurse to find out my MRI results.I did tidy the house,i got my ass kicked by Debs on facebook at scrabble and i wasted £50 on online bingo (im very ashamed to admit that) then it was time to phone and it was bloody engaged for ages,i finally got through to be told that my nurse was now on holiday and she would be able to give me the results,she said that i have a lesion on my left old kidney but wasnt able to tell me if it was cancer...eh?? She said the surgeon was keen to try and take both old kidneys and the bit vein that needs to go through keyhole if i ok'd it,which obviously i will do (do they get it all this way?) I asked her about the fluid on my lungs and what she thought that was,she said she couldnt remember what was said and to phone her back tomorrow same time after she had checked with surgeon??!! I had my own gp in the afternoon and she was really great,she said i should ask to speak to my consultant before my op as i have the right to,she said that sometimes in the NHS's rush to get people seen the forget to actually keep patients informed,she made no promises about my transplanted kidney but told me i was in the best hands,i showed her a bit thats appeared on my foot and she agreed it was suspisious and wanted it removed,but as i only had a week and a half to surgery she is going to ask my surgeon to whip that off too,if not its off to the skin clinic for me.
To be honest i was pissed off at my familys reaction to the news i got from my mri,they all thought it was great news that i was having it done keyhole (hopefully) but didnt see that i was doubly worried that i had lesions on my other kidney (is it spreading?) and that i now had a wee blip on my foot.Maybe its just me eh!
Anyway at night my mum,sister,daughter and myslef all went to see my brothers new house,and met his new girlfriend then went for a girly dinner(haggis,mashed tatties,sweed,then apple crumble and cream!) and took great delight slagging him off behind his back about the age diffrence,she is 21 he is 32,saying things like,will she be alound out after dark on school nights ect ect.Got home to Logan(10) moaning his head off as i had gone out when he was at boxing and how dare i...the cheek of it!
Anyway,not phoning the nurse to be mucked about, going to phone my consulants secretary to see if i can see him before my op on the 1st Sep if possible.
Hope the sun is shining where you are and you all have a good day xx
FormerMember
Leigh......was thinking about you all evening and wondering.......but figured as we hadn't heard anything it was gonna be bad.
I don't think it is BAD is it?? I am as confused as you.........but if the dippy nurse has it right, they at least think they can do something about it?
Your GP is right and good luck getting to see your consultant before the operation, you should have everything explained to you, options, procedures, risks etc so that YOU can make an informed decision.
I'd have skipped dinner (never had haggis but don't like swede) and gone straight to the apple crumble and cream...yummmmmmm, maybe thats why I am getting so fat lately lol
The sun is struggling to shine here and that scrabble game was close!!!!!!
Why can't these people tell us what is going on, some times we need to know! I had to growl alot at my medical team before they understood how I felt and reminded them that I was a human being and not just a number on a damn computer and that my mental wellbeing was has important has my physical wellbeing. Sometimes girl you just have to kick arse to get what you want......................Take care my sweet........................Love carol
Now hold on Leigh, I was 21 and my husband was 31 when we started going out, and we're still together 30 years later, so it can work.
No sun in North Wales, it's absolutely p*****g it down. Feel really sorry for those on holiday and the kids off school. It's not been the best of summers. I'm sure the summers were much better when I was a youngster. So much for global warming! We haven't got it in North Wales that's for sure.
I've finally got myself on Facebook after being badgered by my friends and colleagues. I'm still a novice and trying to find my way round. Maybe we could have a game of scrabble some time, but don't worry, I'm not very good.
Hope you get all the info from your medical team, and good luck with the surgery!
let's hope she's reading from a proper script today! How hard can it be to write stuff down?!? Your family are probably as confused by the garbled message and trying to think of the 'best' scenario. and 'Oy' me and OH have been together 20 years and there's 20 between us - can't choose who you fall for haha. Since diagnosis our jokes revolve around the fact that he's GOT to live into his 90s to keep an eye on the kids (dribbly chin or not)!
thats how they make us feel sometimes, i think its cos they deal with people like us everyday, i think my chemo nurses and onc are great but the system can be brutal and we often have to chase around for info ourselves...... noadays i am wise to this and pester my onc`s secretary.... it works!.. i suppose after 9 years of being ignored, and them missing a new primary plus mets in my liver, i am just not willing to let them mess me around and take control whenever i can, and my natural......... dont want to make a fuss nature.... takes a back seat. kick up a fuss if you feel like you are not getting the proper care and information.... its your life, good luck. liz xx
ps my brother is 52 and his wife is 30 its his 3rd wife and he has never been happier they have 3 young children together and we still take the mickey out of them to their faces, they have a plaque in the kitchen that says an old rooster and a young chick live here! they have been together 11 years and married 9. yep its funny .... but they are good together. x
