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Ok, so here is the latest.  After reaching no remission in 3 years despite various concoctions being injected into my husband he is now going to receive Donor Stem Cell Transplant in anticipation of and I quote the oncologist here "a complete cure"!!!! He goes into hospital in August to have Eshap chemo, he stays in for 5 days and then comes home for 2/3 weeks then goes in again for another 5 days and has another lot.  After this stem cell transplant is organised hopefully using his sisters stem cells.  We know nothing about how he is going to feel, can he have visitors when in isolation and if anyone can help me with this I would be extremely grateful as we can be forewarned and forearmed.  He is extremely scared and sad and without information I cannot help him.  We were blindsided by this news on Thursday, expected more chemo but not stem cell. 

Anonymous
  • FormerMember
    FormerMember

    Hi Jules

    Finges crossed that you're sister in law is a match for your husband.

    I had SCT using an unrelated donor March 2009.

    While in isolation, your husband will be allowed visitors, but I would recommend that he keeps it down to as few people as posisble as the more visitors he has the more risk of infection.  I just had my close family visiting and when they were unwell they stayed away.

    It is a very scarey time for both of you but there are few on this website who have been through this who I'm sure can help (me included)

    If there are any questions you wish to ask, please do.

    I'm happy to accept you as a friend if you wish to contact me personally.

    With best wishes

    Jo

  • FormerMember
    FormerMember

    Hi Jules .

    My thoughts are with you and your Husband tonight . Hope all goes well with the stem cell.

    Take care and be safe Big Hugs Love Sarsfield.xx