OMG my world has just colapsed, my 3 year old has been diagnosed with cancer in her kidney.

5 minute read time.
Yesterday 11th August, I noticed when I took my daughters top off to get her ready for a bath she has a lump about the size of half of a tennis ball on her right side, below her rib cage. I checked the time and my doctors surgery was still open so I whisked her to the doctors not thinking about what could be wrong just knowing that a lump like that needs a doctor. I am not by nature a neurotic mother, I grew up on a mixed animal farm in cumbria, where when you're ill you suck it up and work through it. The doctor examined Naomi and made an appointment there and then (at quarter past 6 at night) with a peadiotrician at the local hospital. Today we chilled out, watching Chitty Chitty Bang Bang on the tv, i spent the entire morning hoping the lump would go down or just disappear. It didn't. I set off early to the hospital, I had no idea where it was as I have only just moved to the area 3 weeks ago. We arrived half an hour early and we were shown into a ward and allocated a bed, which set me off worrying, I don't think it had struck me before that this might actually be serious. Soon the nurse came and introduced herself, Ruth she was called and she was so nice, she brought me tissues because even before we had seen the consultant I kept bursting into tears. Naomi was so not phased by anything, she played with the toys and helped another little girl who was also waiting to be seen. The consultant came and called us, we went through, the doctor examined Naomi and reasured me that I had done the right thing by bringing her in so quickly and still I never thought of the worst thing it could be. The doctor said they would send us for a scan (like when you're pregnant) and an x-ray. and that they would be keepign Naomi in for the night for observation and blood tests. The rest of the afternoon is a blurr really, there was the scan, I knew from then on that there was something to be worried about, the man scanning kept going back to the same place on Naomi's side, re-scanning it and fiddling with nobs and buttons on the scanner. Then there was the x-ray, I donned the lead gown and held on to the tiny paw of my daughter whilst she stood like a rock for them to take her picture. She was amazing, she made everyone laugh, and was so chuffed to be getting lots of stickers for being brave. I phoned my partner Rob afterwards and asked him to bring in our over night stuff, when he finished work. I still hadn't twigged what the doctors and nurses were hinting might be wrong. I tried to get hold of my mum, we're very close and I knew she was worried. But she was at work and so i left an answer machine message, but broke down half way through it saying I needed some one to talk to, at which point Naomi turned to me and said "but it's ok mummy you can talk to me" which made me ten times worse. The doctors had wanted to speak to me about the diagnosis at about 5pm, but as Rob hadn't yet arrived I asked if we could wait til he got there. They were so calm and I assumed that they were going to tell me it was ok, there was nothign wrong and the lump would go away in a couple of days. So we waited. Rob arrived as Naomi was having her blood taken, I could see by the look on his face he was worried. We all went back to the ward and Ruth came through and said another nurse would sit with Naomi whilst we went to see the consultants. She came with us into the room and there was the nice doctor (Nick) who had taken Naomi's blood and the original consultant who had examined Naomi on arrival. Ruth sat next to me with Rob the other side, and the told us. It was bad news, it's cancer. The lump is a cancerous growth on her right kidney. Welms cancer I think is what they called it. I sat and stared, my mind was racing, Rob's hand met mine, Ruths hand met my other hand and the real tears started. I don't remember much else, the consultant said that they were transfering us to Necastle hospital and that we had already been accepted there, we were to go over in the morning (this morning) and they would do more tests and scans and would remove the lump. We then had the choice as to wether we came home and had on last normal night as a family or wether we stayed over night in the hospital as planned. We chose to come home, I know from now on until quite a way down the line our lifes are going to be turned upside down and I wanted one last night of normalness before the mayhem starts. Once we got home it was time to put Naomi to bed and then it was the hardest bit, phoning round and letting friends and family know what was going on. It's really hard at the minute for most of them, my uncle Les is currently dying from cancer to the pancreas, he's all but paralised from the neck down. My gran's partner Ivan has just been told this week that his tumour in his stomach is back and is now terminal. I went to bed after 9pm this evening, and woke at half 2 I have been sat downstairs watching crap tv and thinking ever since as I know if I go back to bed I'll not sleep and that will wake Rob up and as he is driving tomorrow I don't want him tired too.
Anonymous
  • FormerMember
    FormerMember

    Hey Jen Honey.

    Dont stress and think positive. I had kidney cancer and had my left one removed and adrenal gland. I am Fine and funtioning on one really good.

    I never knew i had anything wrong. It was by accident that they found it due to a CT scan for something different. They did not know it was cancer until it was removed and tested so i can not understand them telling you that it is cancer. I will keep my fingers crossed for you and hope that it is not as bad as it sounds.

    Lots and lots of hugs and kisses ((((((((((((hugs)))))))))))))))))

    Jill D New Zealand

  • FormerMember
    FormerMember

    www.mayoclinic.com/.../DS00436

    www.cancer.gov/.../Patient

    www.cancerindex.org/.../guide2w.htm

    I'm so sorry to hear about Naomi.  It is very hard for you to have any sense of calm right at this moment.  I'm not familiar with this cancer, but I did do a few quick researches online to find some places for you start looking for more information.  From what I did read, it sounds like they have made some remarkable advances in treating this form of childhood cancer depending on how extensive it is, which they won't know until her surgery.  I urge you to be as positive as you can.  I will pray that you get some good news after the surgery and that it is not nearly as bad as it could be and that she has an excellent potential outcome.  

    This is a very valuable and supportive group here on WhatNow.  I'm sorry that you are now part of our club, but you will find great people and solace here during your journey.  Be strong, have courage, pray for what you DO WANT and don't fret about what you don't want.

    Best,

    Lori