Talk with consultant and RT consultant update

2 minute read time.

Went today to the Beatson for all the picture taking wearing mask and being marked again before my RT starts have to go on the 18th for pre-verifacation scan and was to have started chemo and RT on the 19th ..but for some reason my net appointment after that was not until the 23rd ..which did not go down well with the consultants as the want it started and kept going ..so its been put back to the 23rd when i will have my overnight chemo plus my RT day either side then home ....not sure how i feel to be honest I do want it to start but having a couple of extra days to get over this chemo cycle is good .

Afterward my daughter Alison and friend Brian and I had a talk with the consultant and RT consultant about exactly what was about to happen to me ...

Firstly I was told not to look at food as something nice to eat it had now to become medicine and it was important no matter what taste or no taste i had to eat ...scary ...

I was told that any side effects would start about 2 /3 weeks into treatment but everyone is different and that some people dont get any until the very last week .

Again as we all know painkillers and to tell them everything thats wrong so they can try fix it ....they said not to use any bought over the counter mouthwashes but they would supply me with one they wanted me to use plus to use bicarbonate of soda and cooled boiled water as a mouth wash ...

they were blunt and said the treatment is agressive toward the cancer and would be tough   but will try and take each day and that days problems as they /if they come ...Brian my friend has to go home the night before my treatment starts but will only be gone over a week and plans to come back ..they also said that i would end up being a pain to live with and would get angry and in turn i would become a pain to them ..lol ..I pray for the courage to endure whatever comes my way in my battle and that in the end I am victorious .

On a lighter note I got my wig today ..had three to choose from and hope i made the right choice lol every time i comb it on my head it slides off lol

Anyway mouth is getting better from the chemo so starting to eat a little better .

ok betetr go take my antibiotics .....and remember my food is my medicine

Love Jan x

Anonymous
  • FormerMember
    FormerMember

    After 28 aggressive high dose chemos, I am still here even though I am supposed to be two and a half years past my sell buy date, so I for one am right beside you. My wigs are redundant now but I had loads of them, long, short, straight, curley and blue and when I used to brush them like yours they would move about. Take care my sweet and remember we fight this together...love Carol xx

  • FormerMember
    FormerMember

    Hi Jan

    A wee touch of super glue in the right spots should keep your new wig in place. If that dosent work try chewing gum.

    All the best and good luck.

    Take care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember

    Hello Jan. Thank you for your comment on my blog, but the main thing is that you have seen your consultants. Well they have been very honest with you by explaining how it may be as the treatment goes on. All that you can do is to keep positive and always take their advice regarding food / medication and so forth - especially the mouthwashes. Great to know you have got your wig - get your make-up and Jackie Onassis sunglasses on and knock them down ! Look after yourself, sweetheart. God Bless. Love, Joycee xx

  • FormerMember
    FormerMember

    Hi Jan. Stay positive and take each day as it comes! Remember that we can all react differently to our treatment!

    Big hugs. Alison. x

  • FormerMember
    FormerMember

    Carol I am always lost for what to say to you as you blow me away by your strength and courage ..Thank you so much for taking the time to give me the inspiration I so badly need to face the road ahead ..

    God Bless You

    Love and hugs

    Jan x