Peter has been working as a volunteer in our local Hospice shop for some time but we had never been to a hospice, until today
His oncology team suggested the time was right to be referred so the initial appointment was this morning..
What a lovely warm welcoming place , the staff were friendly and the actual building clean light and bright. Peter had a two hour consultation with a very nice doctor , she examined him thoroughly and really understood his pain,description she has prescribed Nitromin Sublingual spray as it may be diaphragmatic spasm.
The doctor completed the No resuscitation forms which will be shared with paramedics so there will be no attempt made if the situation arises.
Organ donation forms were completed and we agreed to having an end of life drug box at home.
Our wishes for Peter to remain at home were noted and we explained that should I need more help with caring for him we will move in with our daughter who is also a trained nurse , we believe between us, and with help from our other daughter etc .we will be fine.
We also met the Hospice consultant. Physio and Head Nurse .
Peter will attend the hospice each week for symptom control starting on 9th January.
Now this might all sound a bit bleak but we found the experience very positive we have dealt with the logistics while we are still coping well. We now have a firm local safety net to support us and Peter.
Peter told friends this afternoon he had spent the morning completing his departure paperwork and has got his boarding Pass.
Mushty X
