Peter scored a perfect 10hb today Wow the IV iron has really made a difference, he's had another infusion today he will continue weekly iv's until his iron stores are normal and holding. He commenced cycle 2 today had an ECG A and signed up for FGFR study pre-screening test on his tissue it takes 4 weeks but if Peters tissue has the gene then he may be suitable to trial a drug aimed at the FGFR gene, when he next has progression.
It is brilliant that the team are trying to keep one step ahead, Inoperable doesn't necessarily mean end of the line,
if Peter has his blood restored to normal we should be able to get out an about again.
We are staying at the hospital tonight as only just finished treatment, the blood transfusions booked for tomorrow have been cancelled As he doesn't need them. It feels like we may have turned a corner at last.
I even left Peter having treatment this afternoon and headed off to our room in the family quaters where I had a lovely siesta All in all a very good day
