In the last 7 day’s I’ve had 2 appointments at the Sir Bobby Robson Cancer Trials Research Centre. I’m so lucky to have all this on my doorstep. I had a meeting with the director of the trial’s unit. She is literally the most amazing woman I’ve ever met. Her education, skills and achievements are beyond anything I’ve seen. She’s got a personal page on the cancer UK website honouring her work in early cancer trials. If she can’t keep me alive, no one can. I’m defiantly in the right hands. I had to take a lot of information away with me and go back after 24 hours to sign my life away. They took bloods and I gave them permission to test my tumour for what they needed. They talked about my BRCA test and within that they test for 3 genetic mutations. They have the ability to test for 300 mutations! I just have to wait now to see if anything matches any of the trials they have.
I had my first psychology appointment on Monday. I’ve never had any type of session like this before and it wasn’t anything like I expected. I thought it was going to be someone else asking how I was. But the conversation was just nice and easy and relaxed. I’ve booked in another session with her for a few weeks’ time when hopefully I would have had the results of more tests and done another chemo round. I need to check with the nurses tomorrow at my pre assessment that a CT scan has been booked. I’m not risking a delay or getting forgotten about. I need to have it at 6 weeks to know if this treatment is working.
I had my 4th and final Covid jab yesterday. I’m as protected as I can be in time for all of the restrictions being lifted today. I’m all about going out and living life but I will 100% still be wearing my mask and carrying my sanitiser around. I’m not convinced we are all safe today.
On Tuesday, I had to make the sad decision to cancel my gym membership at my CrossFit box. I just can’t do it anymore. I really miss weightlifting but my poor arm has no strength and is still too stiff to be doing anything like a pull up. I’ve had to give up the expectation that I’m the same person I was before all this malarkey started and instead started today with a 15min yoga flow. Not as easy as it looks. It actually ruined me. I can slowly build up from here without setting myself a million goals that I then get overwhelmed with and do none of them. Here’s to this week’s good intentions.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007