I'm not in a "Fun" mood any mote

Oh, so sorry to hear your news.

Just how are aging, ill people supposed to get to all these appointments?  It really makes me angry.  My Mum had numerous appointments to attend, and I drove her to the ones I could if they fell near or during a lunchtime (I work full time), but it's a real problem if there isn't an extended support network. My Dad no longer drives and I was the only able bodied child (single and therefore having to work full time to support myself).  

Be interested to hear how other people manage.

Sending you very best wishes,

Elaine x

Dear Mick,

So sorry to hear about Mavis, I know how much you love  her. I hope you have  a good long time together to come.

Please phone the Mac advice line. You should be able to get a blue badge for Mavis if you can't have one. They can tell you what help is available. She should also be able to get transport there.

Elaine, It is really hard. My partner doesn't drive so I had to rely on friends to take me to radiotherapy every day for 6 weeks. . I couldn't get transport to my operation and ended up spending £50 on a taxi. They told me I wasn't old enough to get transport!

LM

Hello Mick My husband was diagnosed with terminal lung cancer seven years ago he has done well chemo radiotherapy sadly last June travelled to his brain for which he had radiotherapy also diagnosed with prostate cancer seven years ago both primaries.We were lucky the hospital supplied transport our consultant said we needed transport I don't drive so worse asking.The form under special rules is for attendance allowance if you have a Mac nurse worth asking for their help,when we first completed it they refused the Mac nurse then helped up and it was allowed.Also ask for help you should be allowed a blue badge for your wife.We are lucky we have a Maggie Centre next to our hospital they have a resident person who helps with queries like yours I don't know if you have them I don't believe there are as many in England, in Scotland we are well served by them.I wish you both well in your latest battle I know how tiring it is being my husbands sole carer for the last seven years but treasure everyday we have although now he finds it quite hard to say the words he wants and has difficulty understanding me but everyday is a blessing,by the way my husband is 78 this year.Take care Maureen

Hi Mick,

I'm so sorry to hear about Mavis, you've both had more than enough to contend with over recent years. But you are both fighters and I think you'll be together for a long time yet. Never mind that you don't feel "in the mood" for a laugh right now - you've taken a hard knock and these jobsworths with their stupid interpretations of the rules just add to the misery. As others above have said, you can get a blue badge  for Mavis - b*gger them!

Take care, love and hugs to you both,

Twirly xxx

 Hi Mick,

I am sorry that you have experienced this . I would agree that you should look into seeing if your wife qualifies but seek someone to help you . I understand how difficult and let down you feel by the system. 

It was my "joy" to assess for the old orange badge scheme which came under my duties as an occupational therapist. I hated it as the clinic was full of people with minor conditions with complete disregard for real people in need. However when my mum initially a stage4   patient  would not apply under the special rules as she felt it contained a negative association so she did not qualify automatically but I thought it was clear her mobility was compromised particularly the twelve hours after infusion. We applied twice and never even heard back but cashed our checks!! We would ave welcomed a parking permit for the infusion period only as she required to be transferred by a wheelchair into the car but could walk the next day. I had to get someone to sit in the car and two to transfer.

My dad did not qualify after his stroke and the hospital parking was so bad I went round for an hour and had to send him into his appointment on his own and he could not tell me what went on when he came out!! 

I agree the system needed changed but now it feels difficult to access and preventing the people who are trying to remain independent from doing so . The whole point of the system. Politicians move council systems quicker than anyone else does so if I was you I would ask for representation.

Love Court