Any hugs gratefully recieved thanks x

2 minute read time.

I'm pretty much in a good place in my head regarding my cancer and where I am up to on that so called journey. Then my Onc. appointment appears on the calendar for February and the little doubts and niggles start in my head grrrrrr.

When I was diagnosed I asked straight for a statistic for survival, 60%. I'd rather it been a bit more but at least it was the upper side of 50 eh, so not complaining.

Mr tumour was a T3N2M0 and again i'd rather it been below the 3 and not too happy with the node involvement, but not compaining it could have been worse eh.

Ended up with a permanent stoma which wasn't easy to come to terms with at first but wasn't too much of an issue, 'cos I saw it as my life saver so I must respect and look after it well.

Pity that my radiotherapy zapped my small bowel, so I have permanent diarrehea with the need for loperamide daily. But again that same radiotherapy zapped 'shitface' to a crisp and good riddance for good (i hope).

I'm now two years on and getting on with enjoying life and to be honest the dark places in my head are buried. Lifes good and I have a wonderful family with exciting things to come. For one my daughter is getting married next year and my will have finished his degree. It's lovely to see them starting out in life as grownups.

So why am I feeling uneasy now i've come home from my appointment. They say I have my last CT scan in November and a further three years of six monthly appointments just to check i'm feelig OK. I expressed that I felt uneasy about not having any more scans 'cos of the fear of cancer returning. She saind the highest risk was in the first two years, so once i'm past November, i am at a lower risk. I'm now feeling like a time bomb that might go off before November but also worried about the following years without scans.

I know some of you out there have already gone past this stage so hope you may share your experiences and thoughts with me.

I must mention my dear Dad now. It's been much harder today coming home and ringing mums. He normally speaks to me after all my appointments and was a real comfort. He said the right things and when I called he gave me lovely dad cuddles. I miss him so much but especially feel it today and have cried buckets whilst hoovering to try and distract my silly thoughts.

If you read this, thanks for putting up with the woffle, i'll be back to normal warpiness shortly,

Take care all

love

 

Jan xx

Anonymous
  • FormerMember
    FormerMember

    Poor Jan. My cancer's quite different - except that I'm in limbo at the moment, but I hope that'll change when I see the consultant in a couple of weeks - so I don't have any advice. Just hugs. *hugs*

    xx

  • FormerMember
    FormerMember

    Don't you just hate those silly bloody thoughts???? Here's to lots of warpiness, I too have a yearly appointment coming up to check if I am still cancer free and yes I could sit here and tell you that you would not be human if you didn't get worried when those dates come up on the calendar but I know you are far too intelligent Jan for that kind of thing (Hehe) xxx ; )

    I miss my Dad too and now you've got me in tears and its going all over my keyboard !!

    Stay in that good place, your a star in my book. Get on with the hoovering !!!!!!!!!!!

    Much love

    Ruby xxxxxxx 

  • FormerMember
    FormerMember

    Just wanted to send you some BIG hugs Jan (((((((((HUGS))))))))))

    Tom's not quite at that stage yet, he has been told that he needs to have scans every three months since surgery, first one due next week..... (its been 4.5 months though!)

    Lots of love and hugs, thinking of you

    xxxxx

  • FormerMember
    FormerMember

    Forgot the ((((((((((HUGS))))))))))) XXXXXXXX

  • FormerMember
    FormerMember

    Sending you some more (((((((( hugs )))))))) Jan.

    Hope that you will be feeling a bit better about things soon, afraid these follow-up checks always make us feel nervous and insecure ! I am now into year four post-treatment and my Consultant has moved me onto six-monthly appointments at last ....... so I can totally understand how you feel. Regarding any scans, I haven't had any at all since the preparation for radiotherapy and they reckon that they can tell how everything is just from looking / feeling for any lumps. Yes, I also heard that the first two years were crucial but remember that they know what they are doing ...... so don't fret, you are doing great, Jan.

    The radiotherapy certainly has a lot to answer for regarding the horrid after-effects - but as they said to me, it's done it's job and made sure that any stray cells were destroyed. So we have to be thankful and you have a lot to look forward to with your family ....... we have paid the price for life, I guess.

    Now I am waffling ! But what I wanted to say was stay in a positive frame of mind and keep going forwards - keep the dark places buried and look at a bright future, you can do it !

    Yes, I miss both my Mum and Dad very much, too - but I feel they are watching over me.

    Love, Joycee xx