I actually have an update.....

Less than one minute read time.

Hi everyone, and thanks for the kind messages :)

I went down to the Christie today, and saw one of the main doctors. (Kim)
She agreed it's time they intervened, and they have decided I will be having Vinblastine every 2 weeks, until I get accepted on the trial - then I will stop, and have to be off chemo for a month before I start the trial.
I start next Wednesday.
I've had this drug before, 8 years ago when I first had chemo, but never on it's own.
I've also been put onto steroids again.

I've got multiple new tumours in my neck (both above and below the original ones), and a new one under my arm, just below the original one.
The original one under my arm has grown more than 10 times in size since September.
Not sure about the ones in my chest, as they didn't do an x-ray.

I'll keep you all up to date on whats happening!

Heather

Anonymous
  • FormerMember
    FormerMember

    Hello Hevvur - very good luck with the treatment I hope you will let us know how it goes. Love Jools x

  • FormerMember
    FormerMember

    Thanks everyone :)

    I do feel much better knowing i'm actually going to start some more treatment, im a bit more positive again.

    Rosie - no date for the trial yet :(

    Apparently its very hard to get anything out of the PCT, but the doc down at London said he would try for me.

    If I even had a date I would feel better, it's the not knowing thats bad!