I've used the same title to enter a discussion in the Prostate Cancer Group. Although my last blog entry was upbeat I now have worries for the future of this home with my wife and myself struggling to cope in it.
My pain is better from the pelvic fracture, I can walk about the house with one crutch, not two, so I can carry things in the free hand. But my wife is becoming much worse with joint pains and she sleeps a lot by day. We are due to see her consultant tomorrow and I'm going along with her. I wonder what we'll find out?
We have no one else to be carer. If I get worse again, how will we cope? Our children cannot come to live with us or we with them. They are busy, working people with their own families and two are far away overseas.
So, though I am much better just now, I fear for the future. My decapeptyl injections didn't work and my PSA went up again. I was put back on bicalutamide and this, with finasteride tablets seems to have helped a bit. My PSA taken today for the oncologist visit next week will give some idea of how active the enemy is right now.
We do have cleaning help in the house now, once a week, could be more. We are in contact with the local hospice and palliative nurse for me. My wife's future is uncertain until her specialist comes up with answers and advice on what to do for her. We shall see in the next few weeks.
